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Comment by Amber D on August 18, 2010 at 6:37pm

Hello, someone told me about this website and that I may find someone local on here. I live in Wadsworth, OH (NE Ohio, near Akron), and am hoping to meet someone in person with this condition. I was diagnosed with it about a year ago and am having a really hard time dealing with it. If anyone lives near me and would like to meet, please let me know. I feel like no one in my life understands! I am so thankful for the internet, but knowing someone in person would be great!!

Comment by Rita on August 18, 2010 at 12:48pm

Hi everyone. I'm sooo glad i finally found this site. I'm 17 years old and i've had this condition since 4 years old. The first time I only lost 50% of my hair on my scalp and it grew back with some topical ointments within a year. But in 6-7th grade I lost 95% of my hair on my scalp and it grew back with prednisone, rogaine, topical ointments and PUVA treatments. This time I lost my hair in March 2009 and it hasn't grew back except for "peach fuzz" that has remained since December. I've been wearing wigs since March of this year because of the typical high school atmosphere.. I also haven't met anyone with AA in my entire life.. I'd love to get to know you guys
Rita

Comment by Patrick Moore on August 13, 2010 at 5:53pm

Welcome Courtney and Lana, the best thing that could have happened to me was finding this place so I could finally discuss my alopecia with people who actually understand what I'm going through.

Comment by Lana on August 12, 2010 at 7:46pm

Hi Everyone, I'm new to this site and have just recently started to realize that I wasn't the only person in the world with this "condition" and would love to make friends who know about alopecia. I'm from the Indianapolis area and have had alopecia areata since birth.

Comment by Dave on August 12, 2010 at 5:05am

Courtney- welcome to the site. I think we've all felt that way. Its not achoice to have it, it just happens. However, you're going to get a lot of good advice on what to do and how to cope, so feel
Free to ask all the questions. You'll het answers here.

Comment by Courtney on August 12, 2010 at 12:17am

Hello everyone my name is Courtney and I was diagnosed in February 2010, so this year. I have never had this problem before. Growing up I always had thick hair, and one day my ex said to me, "I think u have a bald spot on top of your head", I said shut up, no I don't, and he said no joke. So sure enough it was true, and I didn't know what to think, later on, I found 2 more patches on my head. I part my hair the same way all the time, and I recently starting wearing hair extensions. However I'm just wondering why I got this??? I know I was extremely stressed out for a couple months before the spot was noticed, but I have no clue??? No one in my family has this....so why would I pick it up, I just have so many questions... :( I'm so new to this

Comment by Cynthia Lee Watkins on August 9, 2010 at 9:52am

Dave, Patrick, and Emilie: The hurtful mockings and vicious assumptions made about your alopecia are just HORRIBLE! I'm so sorry you go through that. I have had similar experiences....for black women in America "hair" is so political, and such a "big deal", that if you don't have any, or if it doesn't look "right", it is assumed that you are lazy and slothful. And I am neither.

Comment by Christa M. on August 9, 2010 at 8:53am

As I envied people going out shaved, I understood that it was my aim to do so as well. From that point further, I gave me a 'cougrage-point' for each time I went out in public. It was a learning process over months and after 50 points I felt ok. I first looked smiling directly into the staring eyes, and as people either got aware of their own staring or answered by smiling as well, I did not get negative feed-back. After a while, I forgot 'supervising' the attitude of others. And so, step by step, I got used to it. People usually do not forget me, which is rather a good point in job research. Yes, I am 'the bald woman' in my place, which definitively gives them no clou about my other caracteristics. And someones ask me about my chemo... but these are just normal reactions and attitudes. I prefere this way to live, because I really was tired hiding myself under a wig.

Comment by MARGARET MCCOY on August 9, 2010 at 7:55am

always thought it was easier for a man to just shave it all off....well from reading some of these blogs i realize that we all are struggling with the same thing. i keep my head shaved. i wear wigs, wraps. the wig and glue manufactures have made a lot of money off me.....lol. nothing like our own hair is it. but im stilll saying hair does not make me who i am. but to remember what it was to have it is another thing.

Comment by Patrick Moore on August 8, 2010 at 11:10am

@Emilie- I've had people ask me if I let my son cut my hair, I've had people ask what the heck is going on with my hair. I've had people laugh for some reason when I try to explain to them what Alopecia is. At this point I would just rather people just mind their own business and not even mention it.

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