Comment

Comment by Emilie on August 8, 2010 at 4:53am

For me it's difficult to go out without tie my hair for mask my spots !!! I motorbiking and when I take my helmet off, my spots are visible..... When I go to the swimming pool it's difficult too. Very much activities are a problem !!! For me to be the centre of attention and mockings it makes me sad.

Comment by Patrick Moore on August 7, 2010 at 11:21pm

I envy people who've embraced their alopecia and have the strength to just shave it off and go out in public without any kind of covering. In the last 3 years I've done it twice, once for my son's christening and recently for my grandmothers funeral, most of the time I wear a hat.

Comment by Dave on August 7, 2010 at 6:35pm

I agree. I am glad that I have the white patches, and gradual loss, but I do still get comments and strange looks. I ignore the better part of them. Not so easy to ignore that which causes inner pain, I agree. A few of the not so common ones sting a little, as if I had done something to deserve it, or made it that way because I'm gay (where those came from, I have no idea) it's just ignorance in it's worst. It's the same thing that makes little children pick on each other, that ingrained behavior these people probably had as children. Knowing that makes it eSier to accept for me anyway.

Comment by Cheryl, Co-founder on August 7, 2010 at 5:14pm

@Tamara, your mom wants what she things is best for you and she is trying to protect you. But sometimes protection is not what we need. Your boyfriend also wants what is best for you, but in a more pro-active way. You sound like your are leaning towards freeing yourself from some things and I think that is positive. Whether you chose to wear a head covering or not, your are moving in the right direction of not hiding your alopecia, even if it means just talking to people about it, it frees you. Hiding can be very stressful and time consuming.

Comment by Cheryl, Co-founder on August 7, 2010 at 5:08pm

Lois makes a good point. I don't think we ever get to the point that we are ready to go out in public. We usually do it with some reservation and fear ;). If that is something you want to try, try it in small doses like Lois said. I started going to pick up my mail, then to the corner store, then joined a new gym and started going to that gym with a bandanna... You may still chose to wear a wig, but getting to a point of comfort without it as well has many positives. Then you hair becomes more like an accessory, like contact lenses, earring, high heels and make up. You may chose to wear them, but on other casual occasions or among friends you are also able to go without. After that point you will know if you want to take it further or you happy with that progress.

Comment by Joyce Marie Hawes on August 3, 2010 at 5:29pm

Hi Cynthia, Yes it is better to wear a wig. Just out in public. Then I take it off inside and let my scalp breathe alnight. Then in the morning when I'm getting ready for work, I put the wig( real hair) on. That's what I've been doing since I lost my hair in 1975. I don't take off my wig out in public cause I'd be afraid. Maybe one of these day's I will. Well, it's nice chatting with someone. I'll keep intouch.

Comment by Cynthia Lee Watkins on August 3, 2010 at 4:29pm

Honey, get yourself a beautiful, long wig that's "down to your butt", or two, or three....

Comment by Tamara on August 3, 2010 at 1:58pm

I know my stomach has been a lot worse lately, and I think that is the stress of my hair, and my Crohn's just flairing up randomly like it likes to do.

My boyfriend is VERY supportive. He told me he would go wig/scarve shopping with me, and we could have a shaving party, lol. Ive talked to my boss and told him not to worry when i come in with no hair as well. I think the only reason my mother doesnt want me to shave is because she knows how much I loved my hair in the past. It was always "my thing". I got millions of compliments on it, it was almost down to my butt. Now its just this annoying itchy stuff on my head...

Comment by Cynthia Lee Watkins on August 3, 2010 at 1:43pm

Honey, please stop staring at the bald spots..and trying to cover them up....all that will do is stress you, and negatively affect your Crohn's Disease. Besides, all it takes is getting caught in the rain, or a slight breeze, to make those spots visible again.

I love it that your boyfriend is so supportive of you! Maybe you two can shave your head together -- and then shave his -- in a show of unity. Perhaps that will help your mother understand that as her daughter you "are not your hair."

Comment by Tamara on August 3, 2010 at 1:30pm

I have been thinking about just shaving it off. My mother is more against it than my boyfriend is. He told me he would shave his head too (not that he has much hair, but it was sweet). All I do is stare at the bald spots in the mirror all the time, and try to cover them up. A wig sounds better and better everyday!

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