Comment

Comment by Lynn on May 28, 2010 at 7:05pm

Thank you

Comment by Mar S on May 28, 2010 at 5:30pm

Lynn, are you on the right or the left? You look so much alike! I think you both are beautiful. Wish I looked that good when I take off my wig! Good thoughts for your sister (and you).

Comment by Lynn on May 28, 2010 at 4:34pm

Hey all you fellow AU's out there. This is a special place to check out once in awhile. Thanks for all your comments and ideas. I'm Lynn I've had Alopecia all my life. I was 2 when my poor mother had to deal with it. Through out my life I must admit I've been traumatizes by "total idiots" and have never ever felt free enough even to wear a scarf. My wig is like the most natural thing to me. (although I have a hate on for wigs--I hate choosing one all the time, I hate when they start to wear out, i hate caring for them, if this would've happened later in life I mite've been one of those brave beautiful girls that go without one) Anyway, I wanted to share an experience I had last weekend...my sister has been diagnosed with breast cancer, it's so hard because she is in the last stages. I have 4 sisters all together, when I was at my sick sisters home, my other sisters wanted to take photos of the 2 bald girls.I'm amazed at how comfortable and beautiful sister is with out any hair...(she does have her eyelashes and eyebrows tho) so there I am "bare me" next to my striking sister, trying to be in the spirit of picture taking. I never ever take my wig off! (Only in front of my kids basically) so i reveal my whole secret, my bareness, nakedness, the part that so many school kids hated me for...what a scarey thing, in front of my family... I went through with it but I was pretending i was having fun, it hurt deep down, so far down i had to go to the bathroom and cry ?? Later some of my bro-inlaws wanted to see the pictures, I couldn't let them look at the real me, it was so emotional and scary, I so want everyone to see me as Lynn who wears a wig....here i am 49 and still dealing with all this hidden pain because of being different. I want to encourage some you today...to stretch yourself, accept yourself and find healing; and if you're a mother of an AU child be aware of there lives and learn if there is any bullying. It's damaged me...I've come a long way that day:)....thanks for letting me share...now i'm gonna be really brave and show you the photo of my sister and I...God Bless

Comment by Day Steel on May 28, 2010 at 1:52pm

Will go to work now but went in to this group. I will check it out when time comes ...

Day Steel - Sweden

Comment by Monique on May 22, 2010 at 8:30pm

Louise - Only because they are total idiots. There are quite a few out there.

Comment by Alyce Martin on May 21, 2010 at 5:52pm

Just joined AU!!!

Alyce

Comment by shafeah m'balia on May 18, 2010 at 8:25pm

hi! i've had alopecia since i was 7 when i lost it all. my parents took me to numerous mds. with no results. we did then find a ny md. named norman orentrieich who gave first oral corticosteriods for about 6 months and then i began steroid injections into the scalp (ouch!). my hair grew back after about 6 months of monthly injections. i've had various bouts of alopecia areata over the years which, until about 13 years ago, would respond to the steroid injections. i'm 57 now and last october, about 2 weeks after minor surgery (the 3 in just over a year) i lost all my hair over a couple of days.
i'm not going to have any treatments and am grateful to God that this is a condition that is not life threatening.
i do wear caps and wrap my head but i refuse to wear a wig because it feels so "not me" and would bring back a whole bunch of childhood memories that i have finally (i think) overcome the ramifications from. luckily, i had several cousins who helped me through the au period when i was a kid - i would have been more of a basket case without them. i forever thank my parents for looking for a cure, but they weren't as able to address the emotional trauma as i needed. yes, kids can be really, really cruel; so, parents, do ALL you can to address the emotional as well and, if possible, find and expose your child with au to others who have it to help them have a sense of normalcy!
kudos to all who are hanging in there; celebrate being unique! i live in NC and would love to talk to other folks - especially women and black americans with au. i get a lot of compliments on the clarity and smoothness of my skin, which i'm just starting to realize can probably be attributed to the au - tho, Lord, i sure would love to have eyebrows......

Comment by JeffreySF on May 6, 2010 at 10:54pm

I know 2 people that have experienced total regrowth. The possibility is always there!!!

Jeff

Comment by Jacqueline on May 6, 2010 at 12:28am

Has anyone had AU and had total hair regrowth? I have had AU since Oct 2006 and over the last month I have had some substantial, yet patchy hair regrowth on my head and about 3 eyelashes....I know weird. I thought I was going to be this way for life. Just wondering ....thanks!

Jackie

Comment by Lori Black on April 19, 2010 at 1:05pm

Mar S, I actually buy a rpay that makes the wigs look shiny on purpose!! Real hair that is clean, shines. So the wigs, when older or needing washing actually get to appear dull. The spray I use is called "Lustre" spray and adds shine. I had a woman the other day at the park comment on how pretty my hair was, I just say thanks and smile!! Blessings!! Lori

• ‹ Previous
• 1
• …
• 25
• 26
• 27
• 28
• 29
• …
• 52
• Next ›
• Page