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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 852
Latest Activity: Jan 19

Discussion Forum

Stronger immune systems?

Started by Laura Adams. Last reply by Simahrya Apr 7, 2019. 43 Replies

Fingernails

Started by Stephanie. Last reply by Simahrya Apr 7, 2019. 64 Replies

alopecia univeralisis

Started by janetparsons. Last reply by Kimmbe Oct 12, 2017. 22 Replies

Comment Wall

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Comment by Amber Price on March 17, 2010 at 6:44pm
i live in Maryland!!!
Comment by jacke hill on March 17, 2010 at 4:43am
live in scotland
Comment by Lorena Fee on March 6, 2010 at 4:26pm
Anyone live in Reno or Northern Nevada
Comment by Melanie on February 25, 2010 at 4:08pm
Anyone living in Saskatchewan with this?
Comment by emad monther alsa'adi on February 15, 2010 at 3:39pm
hi all
Comment by Sherry Stalnaker on February 14, 2010 at 9:06pm
Happy Valentines Day !!!!
Comment by JeffreySF on February 14, 2010 at 12:42am
Luck has it I just have just the one auto-immune disease... (Alopecia Areata) Touch wood!!!
Comment by JeffreySF on February 14, 2010 at 12:20am
Thanks Thea!

You are always a wealth of information. Btw I am a singleton so far.
Jeffrey
Comment by Sherry Stalnaker on February 13, 2010 at 8:40am
your little fella is adorable..my second grandson has AU as well he's only 5. It's funny (they) say that AU isn't hereditary and yet here my little sweetie is as bald as I am now. He had a crop full of golden locks his first year, my son and his wife are now noticing that the other children are teasing him, kids can be sooo cruel, but I figure this will either strengthen him or scar him, hopefully not the latter. I am glad he has me and people like us out there that are readily available to him to reach out to. If anyone has a child that would like to say hello to Austin who has AU I will post after permission from his Mom his name and e-mail address, or give you her facebook address. Good Luck All...Your Friend in Christ, Sherry
Comment by Peggy Parrott on February 12, 2010 at 11:26am
Dear Mimi:
Your little guy is so cute!! I'm so sorry he has AU. My neice lost all her hair at 2 years old but after a yr. it all came back and she is 16 now with thick hair. I hope his immune system straightens out and his hair comes back like hers did. You just never know.
I've had AU for 3 yrs. ( I was 57 at the time) and I too went to many doctors and ruled out all other causes such at thyroid and lupus, ect. I went to dermatologist at the University of Michigan and went thru a series of treatments but nothing worked and it ended up compromising my immune system even more and so I had to stop treatment. My white blood cell count went down to zero so I had no infection fighters and had to stay home until my white blood cell count came back up. That was it for me and so I didn't search anymore for a cure and decided to live with it. I agree that if there is a cure then all the doctors who treat AU would know about it. Take Care.
 

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