Comment

Comment by Trina on October 23, 2008 at 10:14am

I've had AU for the past 15 years and at this point life is too percious for me to be stressed by this.

Comment by Mari on October 21, 2008 at 4:47pm

that is a bummer Claire. totally understand the feeling there

Comment by claire on October 21, 2008 at 3:17pm

my hair has all fallen out again last week what a bummer

Comment by buzz on October 21, 2008 at 2:03pm

as well as losing my hair im also losing the pigmentation on my skin, is got anything to do with au. does anyone know

Comment by Karina Louise on October 11, 2008 at 12:12am

well i'm not completely au but closer to this than anything else so i've joined anyway...why is it that some random hairs just keep on growing when all the rest have fallen out?! like underarm hair...

Comment by Skin on October 10, 2008 at 5:25pm

I've had AU for 26 years. No point in having half measures, give me the proper alopecia jobbie!!

Comment by claire on October 2, 2008 at 2:55pm

IVE HAD AU FOR EIGHT MONTHS AND AFTER FOUR WEEKS OF BEING ON HRT ITS GROWING BACK , SO GET YOUR HORMONE LEVELS TESTED WITH ENDOCRINOLOGY DEPARTMENT.

Comment by Mari on October 2, 2008 at 2:33pm

So it's not just me then? I thought I was doing something wrong since my wigs seem to dry out so fast. It seems like after about 3 months they start to frizz on the ends pretty bad. And I only wear mine to work pretty much. When I get home it is like my shoes, the first thing that come off!

Comment by Ann Wilson on October 2, 2008 at 1:40pm

It's really good to realize there are others out there who have AU. It's a pretty rare disease, I guess. Even when I have talked to my dr. about it, she didn't seem comfortable. I had never thought too much about eyebrows or lashes. I've always been more concerned about my head. I just draw the brows on with an eyeliner pencil and smudge it a little which has worked OK for me. I have light skin and had light hair so it must be harder for those who have had darker hair. Someone mentioned they don't have very good luck with a synthetic wig after a month. I use Henry Margu Shampoo for Wigs, Brandywine Wig Restorer and Estetica Luster Mist which keep it going for another 2-3 months, or longer if necessary. I give credit to those who can go without a wig!

Comment by Cherylnz on October 1, 2008 at 8:07pm

Definitely a bonus having smooth legs, no shaving underarms etc.
Mari I'm glad that I'm not the only one who runs out of shampoo for the kids. My boy's always tell me when its run out completely and not before lol. I need to get my eyebrows done again, they lasted really well. Definitely worth it. Eyeliner to would be great too.

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