Comment

Comment by Valerie Hutcherson on June 16, 2011 at 3:45pm

Rhonda,
Having had alopecia since I was 7, I know what your daughter is going through. The desire to fit in is so strong at that age; you don't want to be different. I always wore a swim cap but that was the norm among my peers--no one was trying to ruin their hairdo's! I even have my 5 year old conditioned to wear hers now. All I can say to you is relax. Take it all in stride, what's a little taping and untaping if it keeps a smile on her face? lol I know it hurts you as a parent to not be able to stop this thing but she will be ok. She takes her cues from you....if you roll with it, so will she. Let me know if I can help in any way.

Comment by Reginia S. on June 16, 2011 at 3:05pm

Rhonda it probably has lots to do with the fact that you see your child growing up with something you can't make go away. It's hard for parents. I wish I could say your little girl's road will be easy. There will be some tough times. But know this, there will also be some good times as well. No matter if she chooses to go with or without wigs. I'm not advocating either decision. But maybe seeing other women who carry Alopecia in stride will help both of you. If I can help please let me know.

Comment by Rhonda Kelley on June 16, 2011 at 2:33pm

A familypicnic would be great. We are vacationing at a water park in Pigeon Forge and Baylee is trying so hard to keep a wig on in the water. Wish so badly she had other alopecians here to play with here. I'm struggling with taping and uptaping an old wig for her to swim in while keeping her newer on nice for the rest of the day. Its hard for me but I cant imagine what its like for a 10 year old to carry this around. She has a swim cap but doenst want to wear it this year. ...so I spend a lot of time taping and untaping. I keep my spirits up for her but inside Im dying. why am I letting this get to me so much this year?

Comment by Angie on June 16, 2011 at 1:37pm

Welcome Vida! to the group.

Comment by Angie on June 11, 2011 at 10:45pm

Hey ATL ! Hope all is well with you all. I'm feeling better! so ya let's get this party started! Val and I communicated about a family picnic. So it's coming soon.

Comment by Reginia S. on June 1, 2011 at 10:06am

Hey Felicia, I was wondering the exact same thing. My schedule is pretty tight but I'm interested in getting together.

Comment by Felicia on May 31, 2011 at 8:53pm

When is the next meetup ladies?

Comment by Shelly Clark on May 2, 2011 at 11:43pm

I am so bummed we can't come. We just found out on Fri that my husband's company is having an event that we have to attend! I hope we can make the next one.

Comment by Angie on March 29, 2011 at 11:54am

Hey Reginia!
Yes, we had fun and we miss there. We are going to have other gatherings, so we'll see you soon.

Comment by Reginia S. on March 28, 2011 at 9:13am

Sounds like you ladies had a great time. I'm sorry I had to miss it.

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