Aussies with Alopecia

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Aussies with Alopecia

Anyone can join but especially Australians

Members: 86
Latest Activity: Jun 19, 2021

Discussion Forum

$70 a week grant to alopecia sufferers.

Started by Fitzy. Last reply by Nicky Lam Apr 27, 2011. 12 Replies

Opportunities in Australia

Started by Goody. Last reply by Vesna Devcic Feb 26, 2011. 18 Replies

AAAF group

Started by Vesna Devcic Sep 18, 2010. 0 Replies

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Comment by Jennifer on February 5, 2011 at 1:59am
i've been suffering from alopecia areata since 2006, for a long time i was wearing wigs, as far as i know there still isn't a cure.. but i was also told in some cases this hair loss was related to stress... kind of hard not to stress when you know your hair is falling out.. causes quite alot of distress and anxiety..
but after a while i stopped stressing about it.. im not dying.. im surrouned by people that love me... i just learnt to be happy.. and not let the negativity get the best of me.. its taken a few years but my hair is now the longest it has been since i was first diagnosed with alopecia.. i did at one stage have less than 50% of my hair..
i still stress out from time to time.. and i will loose a tiny patch about the size of a 5c piece but the regrowth usually kicks in about a week later...
i just wanted people suffering to know there is always hope.. and im living proof of it :)
Comment by Angela Jackman on September 7, 2010 at 8:49pm
QUEEENSLAND ALOPECIA SUPPORT GROUP MEETING ON SATURDAY 6TH NOVEMBER 2010 - CONTACT ME ON angelajackman_1@hotmail.com for further details.... all welcome!!!!
Comment by Chel Campbell on July 12, 2010 at 12:59am
The South Australia Support group is having a get together on Sunday 18th contact liz@aaaf.org.au for more details.
Comment by Chel Campbell on July 12, 2010 at 12:58am
In celebrating Intrnational bald day AAAF on Jul 17, 2010 at 18:00:00 is having
an informal get together to meet other Alopecians and their families. The Committee of AAAF will be in attendance and we welcolme any questions or ideas you have in the ongoing operation of the foundation.
Start Time: Saturday, July 17 at 6:00pm
End Time: Saturday, July 17 at 11:30pm
Where: il Borgo 1385 Toorak Rd Camberwell
Comment by Tracey on June 22, 2010 at 10:16pm
Hi All,

I have an oportunity to tell the story of Alopecia on National TV here in Australia. I would like to hear from any of you, in Australia who are brave enough to help tell this story so we can get some assistance in finding a cure. I know this is a long shot, but it seems to me, that due to the fact that Alopecia in all it's forms isn't life threatening, it is ignored.

Let me know if you're interested and I can give you a call for a chat

Kind regards
Tracey
Comment by Kate Taylor on June 9, 2010 at 7:11pm
Hi Sharalynne
These are a couple of sites my mum found. Maybe you could have a look.
Hope they help you

http://www.lorraineswigs.com/
http://www.bigwigaustralia.com/_catalog_36309/Human_Hair
Comment by Michelle L on May 23, 2010 at 12:55am
Anyone here from Perth?
Comment by Chel Campbell on March 12, 2010 at 12:19am
Hi Aussies,

The Australia Alopecia Areata Foundation is up and running. Please visit www.aaaf.org.au and see how you can get involved or connected into your local support group.

I am keen to get more photo's and articles on Aussies in the media.

The AAAF will be attending the Australasian Dermatologist Convention in Darwin in May and Hair2010 in Cairns in June - if your in those facilities, come along and I will shout you a drink.

Cheers
Chel
Comment by Dee on March 11, 2010 at 4:32am
Hi fellow Aussies!

I am new to this site, live on the Gold Coast and wondering if anybody else here is a Gold Coast resident? I have an appointment with a Freedom Wig rep next week, terrifie of shaving my hair but from what I have read from others with FW they seem like the most natural way to go. Look forward to connecting with some other Aussies :)
Comment by Susan - Jon's Mum on February 13, 2010 at 1:24am
Sounds great Chel
 

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