Hallo,
I,m Carin and i,m from Holland, my englisch is not That good so i hope it is comprehensible.
I was diagnosed with Ffa in june. I did not came als à schock because i figured it uit for myself.i also have lichen planes.i have spots in my mouth and the nail ridges. In internet i found That Ffa and lichen planes are related.
I found this group and became à member because you all sound so possitive.
I dont want to let THE Ffa take over my life so i dont visite THE site very often but it Gives my à Nice feeling that you are all here when i need you.
I read THE most of your experiances and tips. I,m figuring out whats THE best for me.Thank you for al your stories
Hope my experiances wil also help Somebody else someday.

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Replies to This Discussion

Hi Carin - I am Celia and I started this site within Alopecia World in 2012. I was totally desperate. Please keep communicating with us as and when you feel like doing so. It's a horrible disease and there is so little known about it. x

Hi Carin,

Im April, fairly new here too. Welcome to the group: )

Hi Carin- Ive been diagnosed with FFA and lichen planes too. I was very happy to find this site. Its good to share experiences.

Hello Carin and a big welcome to the group. Since Celia started the group last year we now have 96 ladies with FFA joined up and it is a really important part of my coping strategy that I can come onto this site and share experiences. I am very pleased you found us on the internet. Best wishes to you.

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