Replies to This Discussion

Permalink Reply by sallylwess on December 30, 2015 at 10:35pm

Thank you for sharing this!

Permalink Reply by Marytee on March 7, 2016 at 4:03am

Thank you for this

If I have understood the presentation properly it is recommending Vitamin D assessment and supplements

Does anyone routinely take Vit D?

Thanks 

Permalink Reply by sallylwess on March 8, 2016 at 3:59pm

Dragon&Fox, this is great news.  I take Vitamin D sporadically.  I will have to become more consistent.  I am curious about the new hair not being gray.  Is the rest of your hair gray?  About 80% of my hair was silver gray before I started losing my hair.  Now, my hair is pretty much a steel gray color that has no silver in it.  It seems my hair changed color as I lost hair.  I do think the silver hair fell out, but I didn't lose 80% of my hair.  

I wonder if others have seen their hair change colors.

Also, how long have you been on finasteride?  I've been on it about six weeks now.  I think the amount of hair falling out has diminished since I went on finasteride.

Permalink Reply by sallylwess on March 9, 2016 at 10:22pm

I totally understand.  Totally.  I am hopeful that because you are on the finasteride and are seeing some new growth that you might see the condition go into remission.  A bonus would be that you regain some hair.  

I am also hopeful for myself on the finasteride.  

I first saw evidence of loss ten years ago, but didn't start really losing until 2011 and 2012.  That is around the time I learned what was going on and was told there was nothing I could do.  I have lost a great deal of my hair line, over 2 1/2 inches back.  I also have a large bald spot on the crown.  I now must always wear a hat or a hair piece.  Scarves and headband no longer hide the problem.  

Having said that, I must say that the lowest times I had were over the last two and half years.  When I finally lost as much as I have, or realized my worst fears had come true, I became a bit more accepting.  Worry about the loss was worse than actually losing it.  I lost more sleep when I worried about how much I would lose, than I have since I actually lost it.  I even sometimes think I don't look so bad bald in front.  I never wear hair at home or around my close friends or family.  I just wear something when I go out in public.

I still mourn (yes, I mourn) my beautiful hair.  I loved my hair, but in many ways the fear of losing it, and the wondering how bad it would get was worse than losing it and living with it.  

I am 71.  I pray that you younger ladies have a chance for a cure.  I hope I have chance too, but I have had the disease ten years now.  I only learned what I had in 2013.  Remember, we were not really given any options even three or four years ago.  I think the finasteride is the best hope we have.  

I am fighting it.  I am hoping what I am now doing will help, but if it doesn't, I at least have figured out hair piece options for when I am in public.  That has also given me more freedom to accept the disease.  

Permalink Reply by Chris on March 11, 2016 at 9:55pm

I take vitamin D. I had my blood tested, and mine was really low, so my doctor put me on 2000IU a day. I haven't noticed any change in my hair loss, but I haven't gotten sick this winter:)