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I have recently been diagnosed with FFA and have learnt a lot from reading members' posts - thank you everyone, especially Debs for the very useful factsheet.
Alongside my hair loss (eyebrows and about 1.5 cm at hairline so far), for the last 9 months or so I have been suffering from tingling of the soles of my feet. Blood tests have not identified anything, and I just wondered whether it might be linked to the FFA. Has anyone else experienced this?
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Hi Jan, and welcome to the club you never wanted to join! I'm sorry you're having to deal with FFA, and possibly other issues. It's hard to see how the tingling feet could be associated with alopecia specifically, however I think there is something else to consider. I, too, have tingling in my feet as well as my hands. In my case it was long ago diagnosed as Raynaud's syndrome. Because both Raynaud's and FFA are thought to be autoimmune disorders, there could be a connection there for you. I don't know of any medical treatment for Raynaud's, but in my case it is not constant -- just frequent. Many on this forum are finding that having autoimmune alopecia seems to make them susceptible to other autoimmune disorders as well. I have 7 on my plate, including Hashimoto's hypothyroid, but only the Crohn's disease and interstitial bladder disease actually impact me significantly, and constantly. I hope that you will find no others in your system, but look up Raynaud's and see if that sounds like your issue. Best of luck in dealing with everything!
Hi Jan, I too have tingling, burning feet. My symptoms can be very severe at times and then they disappear. My doctor thinks it could be coming from my back. There are other autoimmune disorders such as diabetes and even MS that can cause the burning, tingling feet. Perhaps, all of this could be discussed with your doctor so he/she could sort it out.
I am sorry you are dealing with FFA and other symptoms that cause you discomfort.
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