I have recently been diagnosed with FFA and have learnt a lot from reading members' posts - thank you everyone, especially Debs for the very useful factsheet.

Alongside my hair loss (eyebrows and about 1.5 cm at hairline so far), for the last 9 months or so I have been suffering from tingling of the soles of my feet.  Blood tests have not identified anything, and I just wondered whether it might be linked to the FFA.  Has anyone else experienced this?

Views: 240

Replies to This Discussion

Hi Jan, and welcome to the club you never wanted to join!  I'm sorry you're having to deal with FFA, and possibly other issues.  It's hard to see how the tingling feet could be associated with alopecia specifically, however I think there is something else to consider.  I, too, have tingling in my feet as well as my hands.  In my case it was long ago diagnosed as Raynaud's syndrome.  Because both Raynaud's and FFA are thought to be autoimmune disorders, there could be a connection there for you.  I don't know of any medical treatment for Raynaud's, but in my case it is not constant -- just frequent.  Many on this forum are finding that having autoimmune alopecia seems to make them susceptible to other autoimmune disorders as well.  I have 7 on my plate, including Hashimoto's hypothyroid, but only the Crohn's disease and interstitial bladder disease actually impact me significantly, and constantly.  I hope that you will find no others in your system, but look up Raynaud's and see if that sounds like your issue.  Best of luck in dealing with everything!

Hi Anne, many thanks for taking the trouble to reply to my query about tingling feet. I'm so sorry to hear about all your health issues associated with FFA. Following your suggestion about the possibility of Reynaud's syndrome, I looked it up to find out more about it. It would appear that a common symptom is white, cold hands or feet, which I'm not currently suffering from. However, I think it's probably time to return to my GP to request further investigations. I'm not sure what conditions / illnesses were tested for when I had bloods taken, which came back negative. Thank you once again, and very best wishes to you.

Hi Jan, I too have tingling, burning feet.  My symptoms can be very severe at times and then they disappear.  My doctor thinks it could be coming from my back.  There are other autoimmune disorders such as diabetes and even MS that can cause the burning, tingling feet.  Perhaps, all of this could be discussed with your doctor so he/she could sort it out.  

I am sorry you are dealing with FFA and other symptoms that cause you discomfort.  

Thank you for your kind words Sally; I'm sorry you also have the unpleasant sensation of tingling / burning feet also. At first I was only conscious of it when lying awake at night and thought it might be anxiety related. I subsequently noticed it when I was just relaxing, watching TV or happily going about daytime activities, so concluded it must have a physical foundation. When blood tests didn't show up anything obvious, my doctor's advice was to wait and see if anything developed. The possibility of MS crossed my mind, having read up on possible causes of tingling feet, but that is obviously something which I'd rather not contemplate. I must make an appointment to see her again soon.
Thanks once again, and very best wishes to you.

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service