Comment

Comment by JeffreySF on May 2, 2009 at 1:56pm

Hey Erich,

It takes time to cope and accept your new appearence. Do whatever makes you feel better about yourself. Keep talking to others about alopecia and attend a local support group if you havent done so allready. The annual NAAF Conf is in June, I went last year and going to the conf really changed eveything for me.

Jeffrey

Comment by Erich on May 1, 2009 at 10:10pm

Hi Guys and Gals,
I am still watching my hair fall-out everyday and the patches on my head, eyebrows, eyelashes and body keep increasing. It sure is hard for me as I keep thinking what did I do to cause this. I was under severe stress back in August and am afraid my stress triggered a condition already present. I feel horrible and am planning for my complete loss of hair and when it will occur. I am already researching wigs, eyeglasses that cover my eyebrows, etc. Did anyone else do this or did you just come to terms with the change in your body and accept who you have become. I know I am the same person inside it is just that my outside is changing.

Comment by amir on April 26, 2009 at 7:47am

hi every one

Comment by Giorgio on April 24, 2009 at 12:07am

I´m glad that this group has formed for a long time ago I joined Alopecia World and expressed that I was gay and I was kicked out of the site. A very unfortunately event, specially if it comes from people that want to help people to integrate with the world. I felt really descriminated as I imagen many of you could have felt many times for having alopecia.
Well, I absolutely love guys that have alopecia universalis. In fact it´s extremely attractive to me. It´s that wrong? That´s all I mentioned on the profile when I signed up that time. I hope I don´t get thrown out any more!

Comment by Carol Solis on April 18, 2009 at 8:23pm

hope I can make it ,,looking forward to it, my first year as a totalis gal. so looking forward to new things for me to learn.

Comment by Roger on April 18, 2009 at 5:32am

Houston we got a problem.

I will be there =)

Roger.

Comment by JeffreySF on April 8, 2009 at 10:03pm

Hi Erich,

I am also a 45 year old gay male.
I have had alopecia just under two years now.
Your partner is probably in denial right now and thats why he doesnt want to discuss the issue. That and for fear of the unknown.
I'm gald you found us here. You will get tons of the support you are in need of.
I would suggest trying to find a local support group as well as meeting others face to face will make a huge impact on you for the better.

Jeffrey

Comment by JeffreySF on April 8, 2009 at 9:49pm

Hey Aaron,

What did the consultant have to say about your eyebrows?

Jeffrey

Comment by Aaron on April 8, 2009 at 6:21pm

HI Erich,

I went to see a consultant today about my eyebrows thinning a lot very suddently - it is not the same as alopecia universalis at all, but it did help a lot to talk through it with him as he was a really nice guy. Perhaps you could find a different dermatologist who could talk more sympathetically? Also, how about a trichologist, i.e. a hair specialist, instead of a dermatologist, who would have more experience of dealing with all the other issues which have to do specifically with how we feel about our hair and what it means to lose it.

Comment by Erich on April 7, 2009 at 9:29pm

Thank you for Rose Marie and Sandy. Your words of encouragement and your offer of friendship means a lot to me. I really hope that during this loss process that I experiencing right now that I can stay strong and not bring my partner down. I have so much anxiety over the illness and what it will do to my self-confidence. I am so glad that you let me know that things will get better. I know it is a traumatic experience I am going through and will continue to go through. I do feel "out of control" and need to surrender myself to the final outcome of AU but I really feel alone as the only people I know with AU/AT are on this website.

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