girls with alopecia


girls with alopecia

for girls with alopecia

Members: 117
Latest Activity: Aug 5, 2017

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Comment by Deeann on October 19, 2013 at 4:51am

I am an adult now with Alopecia Universalis, but first lost my hair when I was 7, with regrowth at 14, and then loss again, growth again...

I wanted to let you all know about a book I'm working on. It's really starting to take shape, and I'm looking for additional stories from men, women, children and teens in all stages of hairloss, from all over the world.  I've been featuring people who have made a difference with their experience by making choices to do something better, or to living up to their true potential. If you'd like to be part of this project, feel free to check out my website for "Head-On, Stories of Alopecia". It can be seen at You can also see it on facebook under the "Head-On..." title. I would love it if you could "like" and "share" it so it will continue to encourage more people to share their stories. The alopecia community has always been so supportive of one another, and my hope is that word of this project will spread like wildfire. I look forward to hearing your story.

Comment by Emilee Dowson on July 31, 2013 at 11:47pm
Hey everyone, I'm 16 years old and have had alopecia for 7 years! I've been threw it all with,loosing friend,feeling depressed,relationships,bullying,and all the stress alopecia brings. I believe it's so hard for any girl let alone anyone to have to deal with this,but if anyone ever needs to talk or anything I'm here :)
Comment by Raheela on April 27, 2013 at 12:04pm

love to meet people with alopecia in my area , Stechford, Birmingham, England

Comment by Children's Alopecia Project on January 3, 2012 at 7:17pm

The Children's Alopecia Project is based outside of Reading, PA. If you have not done so yet, check us out on Facebook and on our website at

Comment by lauren on December 6, 2011 at 12:30pm

Hey sarah and lily my names lauren and I'm 18, i have had alopecia for almost my entire life and I know everything that you guys are going through so if you ever need to talk or anything just let me know.

Comment by Lily on November 28, 2011 at 10:06pm

Hi I'm Liy and I'm 10 years old. I have alopecia.

Comment by SutraHuh on April 27, 2011 at 6:49pm
Hello! My name is Sarah, i am 14 and from indiana. I'm struggling with alopecia even though i've had since i was 8. Having alopecia in middle school really sucks! I wear a wig and all, but 8th grade gossip still leaves wounds on my heart. People always come up to me and ask me if i wear a wig, i haven't yet had the courage to tell everyone at my school. I don't have much confidence so i like to keep my alopecia a secret (which probably isn't good). I tell my closest friends and that is all. So i really don't have a lot of people to talk about it with, i usually just end up crying my emotions out instead:( I would love to get to know some more people who struggle as well! Thanks everyone
Comment by velvet on April 27, 2011 at 8:56am
Hi my names velvet i an 16 from england please add me as i would love to talk to people x
Comment by Lisa on February 28, 2011 at 11:54pm
... oh, I also wanted to ask what the best way to meet others ANYWHERE near us??? (Nashville) it seems like she's the only person in the world with aa. I wish there were more kids to talk to. :)
Comment by Lisa on February 28, 2011 at 11:53pm
HI, girls...I'm a mom of an amazing, beautiful 10 year old girl who just got diagnosed in Dec...she hasn't lost it all yet, and we're praying for the best...i just wanted to say how incredible you all are here...I was reading and thought my girl could be as brave soon and post some on here, not to mention start to look into a wig or a headband with's all so new to her and God bless her, she's such a trooper and so brave but I know people are starting to notice and I pray for her to be strong. Any tips from you older girls? :) lisa

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