Comment

Comment by Devin on March 4, 2011 at 3:10pm

Welcome Pat! and I'm glad some of your problems have gone away at least.

Comment by Pat on February 28, 2011 at 11:29pm

I've also had psoriasis [gone for quite some years now thank goodness] bits of virtiligo [also not present now] and diagnosed with polymyalgia rheumatica in the last 6 months. Reading everyones posts here I'm very glad and grateful that's all I've got.

Comment by Devin on February 27, 2011 at 1:44pm

I've never heard of that Monique I'm going to google it. I'm glad I drink bottled water.

Comment by Monique on February 26, 2011 at 9:25am

Has anyone looked into the fluoride connection to joint pain? Went to a raw foods/health course 2 weekends ago and have been reading up on fluoride in our water. There's a way to eliminate it as well. Good place to start is earthclinic.com.

Comment by Devin on February 25, 2011 at 3:44pm

Welcome to the group Andrea, Yeah when I read your page I could tell that you belong in this group, it sounds like you have a lot on your plate.

Yes I believe it was the ANA Antibodies and my Rheumatologists said that this would normally point to someone with Lupus, but with as many autoimmune diseases as I have he’s not sure yet. It’s funny the more diseases you have the more you learn. Pretty soon I’ll be a Doctor or at least an RN.

Monique, I have a new thing where when I lay down on the couch to watch TV my eye that is closest to the floor well water a lot. I wish I could tell what it was that you have but I don’t have a clue.

Comment by Andrea on February 24, 2011 at 6:36pm

Well do I start by listing my diagnoses? LOL! Man, I have basically forgotten that I have severe Traumatic Onset Osteoarthritis (massive car crash in 2003). Compared to the pain of Lupus being in a 115 mph crash (yes really, I was hit head on in my lane) was nothing. Dec 2008 I started getting symptoms which culminated in me going to the ER in Sept 2009 and getting a diagnosis of Systemic Lupus Erythematosus in Dec 2009. I'm doing decently now, have grown hair and gained weight. Of course I have Fibromyalgia, RA and IBS (not full blown Chron's, thank God) and just recently added Psoriasis. Oh well!

I think they were talking about elevated Antinucleic Antibodies (ANA) which was elevated for you, Devin.

And as to "why me?" Actually no...I think "Why not me?" There is nothing so special about me that I deserve to be spared of all pain...I'm not happy that I am going through this but I am certainly glad it is not happening to someone else.

Comment by Devin on February 21, 2011 at 5:42pm

Welcome ladies, I agree with Patricia we have to keep on keeping on! That's all we can do.

Comment by patricia mazzaro on February 19, 2011 at 9:33pm

I have psoriasis, thyroid disease,and my pigment has just goodby also.Presently I have some hair left but not much I have given up on injections as it was only a temporary fix in my case . But all of us must put one foot in front of the other each day and keep marching . .Lets hope for a cure forall this

Comment by Monique on February 19, 2011 at 8:25pm

hashimotos and alopecia u - but my eyes can't stop watering - wondering what that is. appreciate any insight into that symptom. hugs and love, monique

Comment by Lee on February 19, 2011 at 8:20pm

I have sarcoidosis, which my doctor seems to think is why I have alopecia, too.
Sarcoid is an immunity disease. Mine is in my lungs. But I'm OK and feel great.
Anyone else with sarcoid?

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