Hi everyone.  My 6yr old daughter, Scarlett, was just officially diagnosed with AA.  It started in late November with one or two small, smooth bald spots that were totally camoflaged by her hair.  She's had more hair loss since then, but only one spot is 100% uncoverable with her remaining hair.

 

The thing that keeps nagging at me is that the first spot was noticed 2-3 wks after the kids received the flu mist vax.  The pediatrician said it was impossible that the vax caused the AA, but I can't come to terms with that entirely.  What do your experiences lead you to think?

 

Thanks,

 

Heather & Miss Scarlett

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Replies to This Discussion

Hi Heather,
I don't think it is causal exactly--I'm sure it will be years before there is any science to pin our opinions on either way--but I do think that adding an immunization to a compromised system can tax the system and allow for illness or disease to emerge. I developed Lyme disease (which is obviously caused by an external factor/tick bite). But I was bitten two years ago, had trouble getting diagnosed correctly despite a bunch of symptoms, and then developed a virulent strain a couple weeks after my shot and was finally diagnosed. I had a nagging suspicion about the shot and searched on line and found many people whose dormant Lyme went virulent after some immunization or another. I think it will take years if not decades for the medical community to have the kind of science they need in order to be able to say one way or another.
Come to think of it, my daughter started losing tremendous amounts of hair soon after receiving the Flumist on 10/26 and then an H1N1 injection the following day on 10/27.

Christine
I think it is similar to how so many of our kids developed alopecia after an illness or virus, right? My daughter developed it after being hospitalized for RSV. An immunization is a virus, dead (in shots) alive (in mists) but still something else for the body to grapple with and in some cases, enough to let something else take hold.
My 9 year old developed alopecia following several asthma attackes. Like others, I believe anything that triggers an immune response could cause AA to be triggered. The fact that doctors still deny possible links to their shots shows just how arrogant they are. When you don't know what causes something how can you say for sure what doesn't cause it. Maybe its the lawers that keep the doctors from admitting that there could be a link. It wouldn't surprise me. I'm highly leary of western medicine these days so no one in my family gets shots anymore.

Tracy
If you register your child on the Alopecia Register, one of the questions they ask is did immunizations precede the onset. Now my ped said that there is no link--at her 2 year WC this is the only time I have questioned immunizations and their schedule w/ either child, but I have a feeling that the researchers are looking at this as a possible link, otherwise why ask the question? My daughters loss started soon after all her immunizations at 1 year. May be a coinicidence, but also like some of the other posts, I believe virus' play a role. She was sick this week w/ a cold and losing hair again.
Thanks, everyone, for your responses. I agree that anything that taxes the immune system can trigger an autoimmune disorder. I don't understand the way the medical community thinks on this; every person's body is unique in minute, nuanced ways, you cannot say unequivocally that one thing is definitely not to be considered because everyone's different. We did not do the H1N1 because we had noticed the hair loss by the time they could get the mist (my husband is anti-shots).

I tell you what, it was their first and probably last flu shot - regardless of what the docs think. I only ever questioned the varicella before, and then only because our twins (including Scarlett) were exposed when their sister got chicken pox (2 yrs post-vax).

Thanks again, Ladies!!!!
My daughter started losing her hair after she started taking a thyroid medication. Dr. said that there is not a link but I think something is up with that.

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