Replies to This Discussion

Permalink Reply by Mya & Christine on May 20, 2010 at 6:45pm

We have a whole lot more of the fuzz coming in. The gluten-free might be working for us. I am tempted to break the GF diet to see if it is related.

Permalink Reply by Evelyn (Amanda's Mom) on September 8, 2010 at 4:14pm

hi my name is Evelyn my 7 yr old daughter Amanda has had AA since. Sept 2009 In July of this year the AA is really aggressive. She's lost about 20-30% of her hair in less than 1 month. I'm thinking of trying gluten free. I want to learn more about the diet and type foods it involves. I would appreciate any info you can give me.

Permalink Reply by Hillary Howard on May 16, 2010 at 6:07pm

Our daughter is not allergic to gluten but is allergic to wheat. All her allergies are not severe-many are more like sensitivities- but all combined put enough stress on her immune system leading to hair loss...Also have your doctor check both immediate and delayed reactions.

Permalink Reply by Lillian (Tracy-mom) on June 24, 2010 at 2:13pm

My Daughter was gluten free for a year after her alopecia showed up. However, her bald spots continued to spread very slowly and her asthma and allergies came back after 6 months on the diet. I let her go back to eating normal since I didn't see any reason for her to miss out on all her favorite food when we didn't see any results. I'm sure that there must be something triggering alopecia but the body is just too complicated and hair response to slowly to figure out what the trigger or combination of triggers could be. Whatever, life goes on I guess.

Permalink Reply by Antonio (Tony) Rivera on June 24, 2010 at 11:02pm

I wanted to tell you that I have grown up with alopecia since i was 2 and now I am 40 and diet has played a role in the amount of hair I have. When I eat better I regrow some hair my weight also is a factor when I maintain a healtier weight than what I have I regrow my eylashes and eyebrows. My son has developed a small bald spot and since both his mother and I have auto-immune disorders we figured that there is nothing we can do. But I will tell you that my Son beat autisim by using a gluten free diet and I would not be surprised if it may help him or others as well. At 18 months he started down a path of severe autisim for over 13 months we went to Drs. and finally tried a gluten free diet with vitamin suppliments and it is amazing how he has developed. We will try the gluten free diet for him and I will do it with him and I will post our results.

Permalink Reply by Erika Kubat on July 13, 2010 at 10:48am

We did the gluten free for 3 months with no change in her bald spot. I then put her back on gluten for 2 weeks to get a celiac panel done that was completly unremarkable. We are now off gluten free (yay) and are starting steriod cream once a day to see if we can see a change. We ahve had the bald spot for 5 months with no change (thank goodness and keeping fingers crossed)

Permalink Reply by Erin on August 13, 2010 at 2:02pm

I made a post about gluten and dairy elimination last week and just read this series of posts--should have done this first! I'm curious if any one else has results to share--positive and negative. We have been gluten free for three months and while my 4-yr-old daughter's spots are still growing, we have noticed some gluten-sensitivity symptoms are gone: stomach cramps, excessive gas (we could never believe what came from her tiny body!), dark circles under eyes, fatigue. Because this is the last year she will eat all her meals at home, we have added dairy elimination this week figuring this is the easiest time to really experiment with diet. I will definitely post results. I am preparing myself to give in to this and just accept that this is just who my beautiful daughter is, but we are doing one more push of exploring all possibilities--especially because the Alopecia is what brought us to realize her gluten sensitivity. Her body may be struggling form other things as well...We are seeing a naturopath next month and a medical intuitive. If anyone has anything along those longs to share I would appreciate

Permalink Reply by Erin on September 8, 2010 at 12:19pm

Following a gluten and dairy free diet, so far we have not achieved any new growth and my daughter is rapidly losing what is left of her hair. We have been gluten free for 4 months and dairy free for 1 month. We have come this far, so are going to keep it up until the 6 month mark, just for piece of mind that it really did not work. Our daughter is doing really well with the restrictions--I have to say I am over it. If it brings back her hair, I will happily follow this diet forever, but right now we are dealing with losing the rest of her hair and it is hard to add the extra dimension of monitoring food.

Anyone else who was experimenting with diet have results to share?

Permalink Reply by Lillian (Tracy-mom) on August 26, 2010 at 2:24pm

My 9-year old daughter was gluten free for a year. We had her food sensitivities check by AlCAT blood test and avoided all the foods she was sensitive to. She was also taking alot of supplements, probiotics and L-Glutamine. It seemed to work for a while on her allergies and asthma but after about 7 months, her asthma came back pretty bad. It never really seems to help her alopecia at all. Gluten free is very difficult and I'm still amazed that my daughter who was a big time snacker did the diet for so long. Anyway, we abandoned the diet when it saw it wasn't helping. You never know however what will work for your daughter. I go with the philosophy to try everything so long as it will do no hard.

Good Luck

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