Comment

Comment by Elizabeth on November 3, 2010 at 8:38pm

Hi everyone!
I wanted to let all of you parents know that we are hosting an event in Rochester, NY for Children with Alopecia Areata. If you are anywhere near Rochester, we would love to have you and your children attend!

Children of Rochester with Alopecia Areata
Please join us for some jumping fun!

When:
Sunday November 7th from 11 AM-1PM

Where:
Bernie’s Bouncers
80 Sovran Drive
Webster, NY 14580

How:
Please register by email basiledm@gmail.com or by calling 585-967-9441

Why:
To provide an opportunity for all children in the Rochester area with Alopecia Areata and their families to get together and have some fun! There will be a jump house and other activities. Please join us! Children of all ages welcome! This event is private and FREE of charge! Donations to National Alopecia Areata Foundation will be accepted.

Comment by Lynn Bell on September 27, 2010 at 6:13pm

Hi! My 13 year old daughter was diagnosed with AA last week. Our first dermatologist visit is Monday. Do you have any suggestions for what to ask about? Treatment options? Thank you all, and I am so glad you are here.

Comment by Cindy Dyson on August 25, 2010 at 12:06pm

The doctor says my daughter iron is low but i cant get her to take the vitamins with iron she says they are nasty but her hair is starting to come back i had shaved her head and now where she had it before and other places it is coming back she still has some bald spots but i was so glad to see in trying to come back

Comment by Angie, Gracie's mom on May 17, 2010 at 5:15pm

Saida, nutrition seems to be a key for Gracie as well. Every time we stop supplementing iron, her hair gets worse--lots worse (we have blood tests to confirm she is defecient in her iron stores--not anemic). I also supplement her w/ Carnation--she wont do pediasure--and I do think it helps. Her weight is up, her iron is good, and her hair looks really good right now, only a few spots and she has Ophasis pattern. Her derm said it may not be the cause, but deficiencies certainly are a stress on the system and may make it worse.

Comment by Saida Z. (Ariana's mom) on May 16, 2010 at 2:40pm

I was giving my daughter pediasure shakes, gummy bear multi vitamines and vitamin D, because she lost a lot of weight, about a month ago i stoped the shakes since she is back to her normal weight she still takes the vitamins when we remember, anyways i noticed a lot of new spots on the hair that she has left, i think that the vitamines and shakes were helping with the hair loss, we're going back to our old rutine who knows it may work

Comment by Rhonda Pillard on April 20, 2010 at 4:34pm

Hello everyone. My daughter started loosing her hair in Nov. 09. I took her to Childrens hospital in Denver and she is also getting the shots in her scalp. I have to put a topical cream to numb the areas that she might be getting the injections. Since her last round-3 weeks ago, most of her hair has fallen out and the little that she had, we shaved. Her Dr. wants to see the areas that are growing back. For now she is bald with a few stubs growing in. I am not sure when this is going to go into remission and have her long locks come back. Just wanted to make a comment.

Comment by Mya & Christine on April 19, 2010 at 11:59pm

I went to the Westshore Mall (Tampa) this past Saturday and within 15 minutes, and two different stores, I met 2 children with alopecia. The little boy was universalis and the young lady was areata/totalis. Alopecia is definitely more prevalent than we realize, but it goes by unnoticed because many hide their heads in shame or people think they have cancer or something.

Comment by Sara and William on April 17, 2010 at 10:21pm

Saida,
I didn't notice blinking a lot when Boo lost his. If your girl's goes like his, you won't be left wondering too long. Good luck:)

Comment by Saida Z. (Ariana's mom) on April 17, 2010 at 1:44am

I think my little girls is starting to loose her eyebrows :( one looks a lot thinner than the other one, she also complains that she has to blink a lot i wonder if she's also loosing her eye lashes i can't really tell, is the blinking a lot a simpton? i was hoping at least she would be able to keep her eye lashes and brows.

Comment by Shannon **Jose's Mommy** on April 15, 2010 at 6:11pm

ty for answering me back i dont think im going to do the shots i dont want him in pain!...i hate seeing kids in pain. but i see the derm doc this week i cant wait to see what he says about what he can do!...ohh and my son says his scalp hurts him...i hate seeing him rub it all the time i feel bad.

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