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Comment by Suzanne O'Leary on November 4, 2009 at 6:19pm

Rebecca - my daughter's eyelashes came back quite blonde (they were darK) but after about 6 months they have gone dark again.

Comment by rebecca finlaw on November 4, 2009 at 9:42am

my son's eyelashes and brows have started to come back slowly but haven't darkened in color. any comments? his doctor said they would come back but now I am doubtful, hair is re-growing on his head but it is in patches, and is turning dark so that makes me wonder about his brows and lashes even more, thanks for any help

Comment by Susan - Jon's Mum on November 4, 2009 at 12:16am

Larry,
My 13 year old son has had Alopecia since he was 6. He has just recently developed totalis. Looks like it is further developing to AU. He is not coping at all at the moment. He has isolated himself from his peers and from sport etc.
Our school year here starts at the end of January. The year started just the same for my son. Spent less time with friends, gave up his winter sport because too many girls were on his soccer team. He has joined cricket for summer but hasn't gone to training and now doesn't want to play. He has displayed the symptoms of anxiety now for some time. We are getting him some help but he doesn't believe he has a problem and he won't engage.

My advice is to watch your son carefully. Make sure that he does stay in contact with friends because associating with other peers will help him get through this time. If you are concerned about him don't hesitate to seek a professional opinion, even if it helps allay your concerns.
If your son is of a sensitive nature it can effect them even more - AU and hormones don't mix well. Especially for boys i think. Lots of love and encouragement - building him up as much as you can.
Good luck - I know how you feel.

Comment by Pamela on November 3, 2009 at 2:22pm

Larry,
I have three children, aged 13, 12 and 10.. My 10 year old has AA. I also was a middle school teacher for years. Keep in mind that when a child enters the teen years and that great journey to find out who they will become as an adult, they will push back against their parents. It's part of becoming themselves! My 13 year old is pushing now too. She's a good girl, just a normal teenager. At this stage whatever makes them different from their peers is what will make them feel worse. My 13 year old thinks her curly hair is a problem! Her friends have straight hair. To me, it's silly, but to her it's part of her identity and it's different than her friends, so it's important to her. I bet AU for your son is affecting him the same way, it's just that AU is is much more rare! My experience with adolesencts tells me that when the difference is truly accepted as something good by their peers, the child will start thinking differently about that aspect of themselves. Keep surrounding him with good friends. He will need them while he goes through this stage.

Comment by Larry on November 3, 2009 at 12:16pm

My son has been AU for two years now, his going to be 13 next month. I'm noticing changes in his esteem. He is very active with travel sports, grades are good and good friends. He spends less time with his friends outside of the busy activity schedule and becomes upset over very miner things, especially with parents. Sounds like typical teenage stuff, but having AU seems to me compound the issue. Anyone have advice for parents?

Comment by Pamela on October 21, 2009 at 11:36pm

My baby (10 yr. old) just got her first wig tonight! I'll try to post a pic soon, but she sure is happy to have the "hair option" to add to her hats, caps and bald options.

Comment by Ellie on October 15, 2009 at 7:12pm

Andy, I must say that your daughter is adorable. My daughter was 2 1/2 when she was first dianosed with AA. Shew is now 4 1/2 and is doing grreat. She doesn't have much hair but tshe wears scarves and hats to school. Over the summer she didn't hardly wear anything on her head. We did just get her, her first wig. There really is no good wig out there for young kids, I am sorry to say. My proble with the more expensive Real hair wigs was the you had to somehow glue it on to the clilds head. I will get her a custom vacuum seal one when she gets older becasue they are so expensive. As I got to understand and accept AA I realized that it really did bother me way more than it did her. I hope that you and your daughter are doing well.

Comment by Amit on October 14, 2009 at 4:10pm

Can someone advice on wigs for 2.5 years old girls? Any input will be appreciated thanks.

Comment by Monique (Mom) on October 12, 2009 at 9:12pm

Hi everyone. My Gabby, 18 months, still has no hair. She lost it all at 11months and hasn't regrown at all. I am concerned. She is so happy and loves life. It is my issues that I have to get over. My concerns and what ifs rule my thoughts. One day, I hope to see a cure.

Comment by Susan - Jon's Mum on August 30, 2009 at 8:10am

Can anyone offer suggestions on how to get my son with AA involved in sport. He usually plays cricket and soccer. Used to attend Tae Kwon Do as well. He dropped out of Tae Kwon Do. Wouldn't join soccer this year and says he won't sign up for cricket for this summer.

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