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Comment by Monique (Mom) on August 6, 2009 at 2:51pm

I can't wait for Alopecipalooza!!! Anyone going this weekend?

Comment by Monique (Mom) on July 28, 2009 at 8:02pm

Thanks Wendy! Great post. I appreciate it. He is adorable. I smiled looking at your pic. I am also trying my best to raise Gabby with a high self-esteem and to be tough. She already is feisty and tough (like me...lol). I hope this carries her through possible hard times. I am still hopeful for a possible cure in the near future for our babies to see.

Comment by Wendy Willeroy on July 28, 2009 at 11:13am

Hi everyone, Monique, my son just turned three, and although he has AU I can honestly say that I don't get questioned all that much about his hair loss. I think this is because most strangers that we encounter assume he has gone through chemotherapy or just feel that it is rude to ask. However, it does happen on occasion, most of the time prompted by another child's curiosity, and at those times I ordinarily respond with "because God made him that way," "because he is special" or something along those lines (when talking to children). I am just as happy to talk about the fact that he has alopecia and why this causes him to lose his hair, etc, if time allows and there is interest, but as a general rule I don't really feel a need to "explain" to strangers why my child looks the way he does...to me, he is absolutely perfect just the way he is! He does attend preschool, and all of his teachers and classmates (to the degree that three year olds can grasp) are aware of the fact that he has AA. Sometimes he comes home from school, pats the top of his head and says, "Mommy, no hair?" So we talk about it sometimes, and I am always sure to tell him how beautiful he is, inside and out. To me, more important than formulating the best response to give curious strangers, is just to instill self confidence in my child, and to help him develop a positive sense of self, with or without hair. There will always be questions, just because it is a little out of the norm, and I hope that by starting out in the world with confidence about who he is, he will be able to take such questions or comments in stride. Part of doing this, I think, is to help him connect with other children with AA; I just want him to know that he is not alone in the world with this condition. To that end, I am so happy to have found this site, everyone has been very welcoming and I have found such great information! It makes me happy to know there ARE such resources available out there that will help him to better understand AA and possibly cross paths with other children similar to him in this way. Thanks, everyone! *Whew, sorry for the long post! ;-) *

Comment by Monique (Mom) on July 27, 2009 at 8:29pm

Ok. I need advice. My baby is only 15months, but we are starting to get stares and I am hearing questions and comments. I do hear other kids turn to their parents and ask, "Why she has no hair?" Adults say, "Where is your hair"? It is really hurtful becuase I don't want Gabby growing up hearing this all the time. What do you do? How do you answer? I have just been telling people she has Alopeica and they feel really stupid. lol. Any advice.

Comment by Monique (Mom) on July 24, 2009 at 7:24am

I go to Johns Hopkins and see the director of pediatric dermatology. In my opinion, you don't get much better than that. I asked him about Dr. Shmuel and his treatment. He said, "Be cautious of magic potions". I personally won't try anything that I don't know anything about. I feel if it worked very well, no one would be bald and it would be very well known. Herbal or not, we don't know what some herbs can do in the future. Just my opinion and some food for thought. Bald or not, I want to know that what I am giving my baby is 100% safe and tested and proven to work now and in 20 years.

Comment by Christine Messner on July 23, 2009 at 10:57pm

Hello Sabine,Well I have never tried ThymuSkin! But this is what I cam tell you about Dr Shmuel's treatment. It is a herbal treatment no steriods, so safe you can eat it and it won't hurt you so very safe for my 2 year old. So you get a shampoo and 3 months of a topical cream.You put it on the scalp before bed..Go on facebook and go to the children with alopecia group,you can join him as a friend, that's how I found him and he called me and spoke to me.I have heard nothing but awesome things about this man. He has helped so many people..

Comment by german mama in NY on July 23, 2009 at 9:37pm

Hallo to everyone on Alopecia World!!!!
Is there someone who have experience with ThymuSkin??????
Danke, thanks, Sabine

Comment by german mama in NY on July 23, 2009 at 9:28pm

Hallo Christine, I am very interested with the Dr Shmuel Gonen treatment, but I can not find anything on his webside what this treatment is about, please can you explain my more, so if I like it I can get in contact with Dr Shmuel Gonen. Did you or you know someone who try ThymuSkin, I hear from a mother of a girl with AA that her dauthers hair grow back since she use Thymuskin ??!! Please let me know, thanks Sabine. And good luck for your cutie!!! Delete Comment

Comment by Sara on July 23, 2009 at 6:56pm

My son has AU since Jan. and will be 3 this Sept. This summer we were concerned about him burning his head. We tried Under Armour youth skull caps (the ones w/ a black band around the bottom) and he loves them! He wears one all the time- we have 4. They do not get sweaty and are really comfy for him. Just thought I'd pass on a tip :)

Comment by Christine Messner on July 23, 2009 at 5:15pm

Hi all, well we got Kyler's treatment today. Since there are so many people that are intrested about DR. Shmuel Gonen treatment that I am going to start a blog and do a week to week report...wish us luck!

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