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Comment by Christine Messner on June 17, 2009 at 6:16pm

Why is it so hard to find other kids with AA in winnipeg to get this BBQ thing going?? There has to kids who could benefit from meeting each other,,I just didn't think it would be this hard!

Comment by Monique (Mom) on June 8, 2009 at 8:31pm

Ok. I have a question from anyone with experience with this. My baby is now 14months and she started loosing it all at 9 1/2 months. She now has tons and tons of white hair coming in on her head and eyebrows. It is white and there is a lot! It has gotten longer too. Will it get a pigment? Anyone else notice this and have luck? Is this a good thing?

Comment by Heather Marie Brown on June 1, 2009 at 8:18am

Well I haven't been around in a while and lots has happened. Crystal, my 16 yr old, informed us 4 months ago that we are going to be grandparents. Truly scary and upsetting, but I still love her dearly. Her AA has not gotten any better although the doctor said she may get some growth, if anything it's been more lose. Now she has become even more worried because you can really see the spots. I am just waiting for her to finally say "what the crap mom, let's just shave it all off!" But because kids a so cruel I do not think this will happen. I just really want her to embrace both her inner and outer beauty and be happy, especially being pregnant.

Comment by Debbie Lopas on June 1, 2009 at 8:11am

My 11 year old son has never met anyone with alopecia. I would love it if we could meet another person with hair loss so he sees that he is not alone. Does anyone know of any children with aa that lives in the Detroit/West Bloomfield MI area?

Comment by heidy on June 1, 2009 at 2:15am

Hi everyone! Does anyone live in L.A., California??? I really would like my 13 yr.old daughter to find someone she can relate to and meet. She was just recently diagnoised. It is spreading really fast. She gets injections every 3 weeks. She is showing very little progress and the doctor said it was going to be a slow process. I can not wait to show this site to my daughter tomorrow, and hopefully she will find some comfort in your stories. My prayers go out to all of you!!!!

Comment by Monique (Mom) on May 29, 2009 at 8:50pm

ahhhhhhhhhhhhhh, a bald cat!! I was just saying this the other day. So funny!! I too would get one for my baby Gabby. She is now 14months and started loosing her hair at 91/2months. I am seeing a lot, a lot, of little hair growth. I am praying for her hair to come back. She has no eyelashes or eyebrows at all. I hope this is a good thing. Anyone else see this happen. I see little hairs coming in. Tons! They are all blond though, white. I hope they get some pigmentation. There is a lot though.
Anyone on here from Maryland?

Comment by Sara and William on May 29, 2009 at 10:12am

Have you signed up with CAP? I think they can try to help you locate other people in your area, but of course that only works if they've signed up, too. I'm the only one registered in Nebraska, for example.

--Sara

Comment by Christine Messner on May 29, 2009 at 9:53am

Is there anyone who lives in Winnieg,, Manioba??????????????

Comment by Sara and William on May 25, 2009 at 2:22pm

That sounds like fun, Christine! We live in the midwest (US), but if I lived anywhere near you, I'd be there lol.

Comment by Christine Messner on May 25, 2009 at 1:29pm

Hi I live in winnipeg,manitoba canada...I live in the St.Nobert area.. I was thinking of have a AA BBQ, I have a pretty big fenced in yard and tons of toys in get into.Since there's not much for kids in winnipeg I thought I would have my own kids day.. I think it would be a great way to meet other parents and kids to meet. Let me know what you guys think and if it seems something you'd be intrested in let me know and I'll get a date figured out.....

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