Comment

Comment by Sharon on May 16, 2009 at 2:56pm

Hi Lilly Nicole had just had a vaccine, whether it sped it up or initiated it I'm not sure but I am sure that it had something to do with it. Just recently Nicole has had the vaccine against cervical cancer HPV. I was so concerned that I phoned the lady who is organising it in NZ and expressed my concerns to her............she said that she doubted this particular one would cause hair loss (not that Nicole has any too loose lol I was hoping it might make it grow back ) however she did say that the earlier one she had (which at this early stage in the day I can't think what it was sorry...brain freeze has set in) did have a side effect of hairloss which I didn't check =( and even if I had of it wouldn't of changed my mind having her get it because I never in my wildest dreams imagined this could happen to her and had never heard of alopceia.

So it is a valid claim I think linking the two but which is worse the disease or the vaccine I'm not sure I think it's a hard one like I said I wouldn't have changed my mine about immunising, although it did make me question it the next time.
Take care
Sharon

Comment by Lilly on May 12, 2009 at 11:45pm

I have read that there is a connection between vaccines and hair loss...and as I look at the poll here for the age of onset of the alopecia it's interesting the highest percentage is in the 3-5 year range...which is when most of our kids are getting vaccinated...just out of curiosity how many of you kids were vaccinated not to long before you notoiced hair loss?

Comment by Lilly on May 12, 2009 at 11:39pm

My daughter was diagnosed with Alopecia in november, it was a small spot, and soon she lost all her hair..she is now losing her lashes and brows...it is really heart breaking, I wanted to know how or what or if you guys talked openly with your kids at this young age...what did you tell them and how...I don't know what to tell her just yet...we have only tried the creams and are now using a large dose of Prednisolone once a month I don't know if that's the greatest idea but we want to do everything...has anyone given their child these steroids..and was it worth it??

Comment by Danielle & Lilly on May 2, 2009 at 9:01am

Sara and William, we are considering home schooling. Still it is a lot to think about. It is a tough thing to decide.

Comment by katie on May 1, 2009 at 8:49am

Hi Everyone
I have a 16 month old son who has been diagnosed with alopecia.
We live in Australia and are finding it very difficult to get information on babies with alopecia.
My son started losing his hair from around 6 months - he now has no hair on this arms and legs and has lost at least 75% of the hair on his head. He still has his eyebrows and eye lashes for the time being as am sure they are starting to thin.
I would love to hear from other parents with babies that have alopecia especially any from Australia!!

Comment by Sara and William on April 2, 2009 at 11:02am

Boo bumped his head and has a red scrape right on the top now, which all the kids asked about yesterday. It was so hard to drop him off this morning. He kept asking when his wig that looks like his hair (THC--we got him a synthetic for a stopgap, but it doesn't look natural so he doesn't wear it) is going to get here. Anyone else ever have moments where they consider home schooling?

Comment by Mom Jennifer, Son Joaquin on March 30, 2009 at 7:02am

Hi everyone, just to let you know, for those in Canada, a Canadian Alopecia Areata Foundation is coming soon. I will provide more details here when available.

Mom Jennifer

Comment by Maritza on March 25, 2009 at 6:17pm

Hi Allison, my son 6 has AU since age 6 months. He had 75% hair growth in one year at age 4 and at age 5 proceeded to lose it all. He now has eyelashes and is growing eyebrows. My main concern is his eyelashes b/c they do such a great job of protecting his eyes from allergens, dust and other particles. My perspective on this disorder is take it for what it is, hairloss. I tell myself, my son and others constantly that it could be much worse. That in itself is the strongest message I could send anyone. It's the truth and it helps. When I think of all the children with cancer, heart disease, paralysis, then I tell myself we can deal with this.
In addition to AU my son suffers from ezcema and severe food (anaphylactic) allergies and environmental allergies. The allergies concern me more than the alopecia Universalis, b/c they are life threatening and the AU is not. We can only hope and pray for a cure in the future, but for now, we need to look at the bright side of our lives and live each day for what it is. I hope you can lift your son's spirits by using this, it could be worse explanation. Keep positive.
Maritza Stern

Comment by Sara and William on March 20, 2009 at 12:12pm

I don't see my post in the discussion forums...did I accidentally email the thing about the bald cat instead of making it a post?

--Sara

Comment by Jess (Jordyn's Mom) on March 20, 2009 at 12:08pm

Sara,

we would love to have a bald kitten..we have been looking but they are HARD to come by..and very expensive

• ‹ Previous
• 1
• …
• 24
• 25
• 26
• 27
• 28
• …
• 32
• Next ›
• Page