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Comment by Nicole on January 13, 2009 at 9:05am

It's been awhile since I 've been on. Gigi has only had that one spot (knock on wood) but i've noticed her hair is VERY thin on top in the front while the back is thicker. Makes me nervous.

Comment by Tammy -mom of Ramsey on December 1, 2008 at 2:11pm

Okay, my daughter came to me today and showed me a picture she drew of a little girl. Remember I don't talk about Ramsey's alopecia to her. She doens't know wha tis going on yet. When she told me this picture she told me, "mom this girl wears a wig." I asked her why and giggled and said, "Mom, because she has no hair!" I asked her if she thought the girl was beautiful and she said yes. I just thought it was intersting and would share with you all.

Comment by Children's Alopecia Project on November 24, 2008 at 9:34pm

The Children's Alopecia Project is based in Wyomissing, PA. We help children with alopecia build self-esteem, provide support and raise awareness. We are looking for volunteers for ALOPECIAPALOOZA August 7 -9, 2009 at the Sheraton Society Hill, if you are interested reply to this or email me at jefferywoytovich@yahoo.com

On Saturday, March 28, 2008 we have our Spring Spectacular Silent Auction. Open Bar, food, Berks County Jazz Fest Location, hundreds of silent auction items. The last four years we have had a total of 1400 attend raising $140,000! We are always looking for sponsorships and donations too!!

Comment by Tammy -mom of Ramsey on November 20, 2008 at 3:20pm

Also, Is it true that most AA cases do not get that bad?

Comment by Tammy -mom of Ramsey on November 20, 2008 at 12:33pm

My daughter (seen in picture) has just been diagnosed with AA. I am having a very hard time dealing with this, and I am very glad to have found this site. It started when she was three, but the hair dressor told me it was probably from her pulling on her ponytails (it looked odd to me, but what did I know). Last month she got 3-4 small spots and I took her to the doctor (actually a P.A. who was comepletely worthless). Since then she has gotten a few more small spots and two of the other spots have grown. A new spot and one of the older spots seem to be merging togather into one bigger spot. I also think the hair on the top of her head is about 10-20% thinner. She is comepletely unaware of what is going on.

My Daughter is a very stressed child and has actually been through counseling in the past to help with an anxiety disorder. I don't want to add this stress on her until it is unavoidable. My 7 year old did ask the other day, "why are their holes on her head?" So I think the time will be sooner rather than later to talk to her about it.

That P.A. has refused any kind of blood testing on her until she has seen the dermatologist (like I said comepletely worthless). I would like information on natural ways to promote cleansing and hair growth for her. I read about tee tree oil shampoo somewhere in one of your posts. What is it? Where do you get it? Please help me get ideas for compeletely natual ways to help her hair grow.

I was also wondering if anyone has tried Thymuskin or Carosol? I know I am grasping, but it is hard for be to belive that my daughter may go bald before she turns 6. I know you guys will understand, no one else does.

Comment by Lyndsey on November 10, 2008 at 12:15pm

Anyone here from the Indiana/Michigan area?

Comment by Lyndsey on November 9, 2008 at 9:30pm

Hello all... I am new here obviously. Our 8 yo daughter, Lyndsey has alopecia and we are awaiting on the test results from the pediatrician to find out the cause or even why. I'm not sure exactly what type she is being diagnosed with but her hair loss look similar to the little girl's photo at the top of the page. I was so happy to find this group as we live in Michigan and I haven't found a group yet.

Comment by Stacey, Olivias mom on October 31, 2008 at 9:15am

My daugther has always been confident with her alopecia today I was informed by her teacher that she took it off in class and some of the kids were shocked and she was very proud of herself. The teacher was wondering if it was ok but without actually asking me, I said Good job Olivia in front of the teacher. I think this reinforced that it is a-ok, she should be proud of who she is I hope she feels this way in the years to come!

Comment by nikki on October 27, 2008 at 4:31pm

hi everybody my daughter has had AT for abt 7 years chloe copes pretty well ,she has a wig but rather go round without it also goes to school with no wig which is very brave in my eyes ,im tryin to find out abt hair bein glued into the head ,its abt 1500 pound so if anybody knows any gd information abt it plz give me a message thanks, nikki

Comment by JOSE CHARQUENO on October 24, 2008 at 12:05pm

MY SON JOSE HAS HAD ALOPECIA TOTALIS FOR 3 YEARS AND WE ARE COPING WITH IT VERY WELL. I JUST STAY POSITIVE AND ENFORCE THE FACT THAT BALD IS BEAUTIFUL. FOR THOSE THAT HAVE GIRLS I KNOW THAT IT IS HARDER BUT JUST REASURE THEM THAT THEY ARE BEAUTIFUL AND KEEP YOUR HEAD UP HIGH AND BE STRONG SO THEY CAN BE STRONG. JUST THINK ITS JUST HAIR!!! ITS NOT A TERMINAL DISEASE OR CANCER IT JUST AFFECTS THE HAIR. KEEP POSITIVE ALWAYS!!!!

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