Parents of Children with Hairloss

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Parents of Children with Hairloss

Here you can talk amongst other parents about treatments, highs, and lows.

Members: 634
Latest Activity: May 17, 2020

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Discussion Forum

Looking for the kids with alopecia at Jenkins Middle School in Colorado Springs

Started by Sara and William. Last reply by Austen May 17, 2020. 2 Replies

My son and I are moving to Colorado springs this school year to join his dad, who has been there for a year and a half now.  My son has alopecia, and naturally I was concerned.  Both times he's gone…Continue

my daughter doesn't want to wear her hats to school anymore

Started by Saida Z. (Ariana's mom). Last reply by andirnaat Dec 11, 2019. 13 Replies

This is my first time starting a discussion and i'm fairly new to alopecia world im sorry if im off topic but i am worried about my daughter she is 6 yrs old in first grade and has been wearing hats…Continue

Food Allergies

Started by Hillary Howard. Last reply by HarrisonPorshe May 2, 2019. 29 Replies

We have taken our daughter to a Naturopath and she was tested for food allergies. Sure enough she tested positive for quite a few (wheat, soy, dairy, white beans, eggs, cabbage, shellfish...to name a…Continue

Newly diagnosed child

Started by Alexandra. Last reply by Ebs Family Oct 18, 2018. 1 Reply

Hello i noticed a week ago my daughter lost a clump of hair I thot she needed a hair treatment (my daughter is mixed) we got a treatment trimmed her hair and then 4 days later I found the bald spot I…Continue

Friends?

Started by Dusti. Last reply by VelmaJDennis Sep 22, 2018. 6 Replies

Hello, I am a mother of an 8 yr old beautiful little girl. She was diagnosed with Alopecia when she was 3 yrs old. It started with just bald spots and they would grow back, but last year she…Continue

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Comment by Igotluckey on March 24, 2015 at 9:52pm
Thank you.
Comment by Jaeden's Momma on March 24, 2015 at 9:29pm

Hello Everyone,

My daughter was diagnosed at age 8 with AA and she is currently 90% hair loss.  She is now 10 and  We have found a new Dermatologist who is trying a new treatment called an Eximer Laser, typically used for patients who suffer from Psoriasis/Ecxema. She had found information about some limited studies that had been done on AA patients to promote Hair growth and to stimulate a response. In a different location she had also done the steroid injections to compare the results of both. To our surprise she had an equally comparative result and luckily for us, insurance has covered both types of treatment. Just want to get the word our there that she having promising results from the Eximer Laser and is currently having regrowth in almost all areas of hair loss. Some areas may be a little more stubborn and resistant as they have been gone longer. We are very excited about this and just want to make others aware that this form of therapy is out there and may be an alternative, much less painful option, for yourself or your child. It has very minimal risk, similar to the effects of a very slight sun burn. I cannot stress the amount of growth she has had in just as little as 4 weeks time. Hope this is helpful and will continue to try to update or answer any questions anyone may have. 

Comment by Igotluckey on March 24, 2015 at 8:38pm
Thank you. It's been a slow thing. Did you have blood work done? I wonder if hormones have anything with hormones.
Comment by MummyWendy on March 24, 2015 at 8:16pm

Hi Igotluckey. My daughter was diagnosed with AA aged 3. Within 9 or 10 months it had all grown back again and her hair was just like anyone else's for the next 5 years. Last year age 8 - when we'd forgotten all about AA - it all fell out. She is now AT. But I wouldn't assume any patterns for your daughter. Everyone's journey seems to be different and the hard thing with alopecia is it's so unpredictable. Fingers crossed that this is a short-term thing for your little girl. Stay strong for her.

Comment by Igotluckey on March 24, 2015 at 12:21am
My daughter is 8 and was just diagnosed with AA. I am devastated! I have no idea what is to come. Is AU the outcome for everyone? The doc made is see, like it was going to go away. It started last year around November and has slowly gotten worse until recently her spot has gotten bigger. HELP!
Comment by Trusting in God on February 15, 2015 at 2:50pm
Hi bluesky...I think it just depends on your sons immune system and the severity of the Alopecia. My sons hair started falling off in tiny patches, but then it got so bad everything from hair to eyelashes and brows fell off in 3 months. this is how the dermatologist figured that he would never grow his hair again. Like Aimee said just try to treat him normal and encourage him as you all go through the process together. Good luck ❤️
Comment by Trusting in God on February 15, 2015 at 2:45pm
Hi everyone! My 4 yr old son has AU and he recently got a cyst in his bottom eyelid that has to be surgically removed...has anybody else's children experienced this?!
Comment by Angie on January 22, 2015 at 5:52pm

Hello bluesky! My son's started at 18 months with patches, but everything was gone, including eyebrows and eyelashes, by the time he was 3. He is now 7. He occasionally gets light fuzz, but they never go anywhere. We are still always hopeful because it is unknown what the body can do. We have learned that his was probably triggered by leaky gut and infections, including Lyme. Anyway, he is still very confident and I attribute it to the fact that speak openly and honestly about everything and we don't behave as though it is a problem. We laugh a lot and enjoy life as it is and never give him reason to feel something is wrong with him. All I can say is focus on the positive so that your son doesn't pick up any negative energy as though he should be sad or embarrassed about hair loss.

Angie

Comment by bluesky on January 22, 2015 at 3:55pm
Hello I have a 3 year old who has this. He recently started showing bald spots. How fast did your children's hair fall out? I love my son's hair.. full dark brown and thick. For now I can cover it but in the summer time I need to cut it short. I'm worried he might get shy.
Comment by PamFitros@boldlybaldwomen.com on January 21, 2015 at 12:06pm

I caught a segment of the Today Show this morning. They did an experiment to see the impacts of curly and straight hair when women changed their look from one to the other. The show invited women to tweet their comments and picture...so I did.

I think this is a great opportunity to get attention for those of us and our children who don't have hair. Please check out the link and share it in as many places as you can think of. And, if you are willing, tweet a picture of your child with alopecia to the today show. You'll find the hash tag when you click on the link.

http://boldlybaldwomen.com/57-of-teen-girls-and-44-of-adult-women-a...

 

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