Comment

Comment by barbara on April 17, 2008 at 9:20am

Hello- are there any parents out there with older children with alopecia. My daughter is 20 and has just lost all her hair , last year.

Comment by Cindy on April 16, 2008 at 12:12pm

Myself and another mom are meeting in the chat room at 9pm EST time tonight, (WED) if anyone wants to join us..Cindy

Comment by Mommy on April 12, 2008 at 11:23am

Hi all! My almost 4 year old has had alopecia for about 1 year. At first she was just losing patches and then about 6 months ago she lost it all. She now has alopecia totalis. We have been only wearing hats but now we have been thinking about wigs. Yesterday was the first time a stranger asked me ( in front of her no less) if she was sick and had cancer. I was kind of shocked. One because I thought it was rude. Two because it confirmed what before I just theorized about. I thought people might think she had cancer but part of me just hoped strangers just didn't pay much attention to other peoples kids. That is I thought just seeing her wouldn't make others passing by immediately think something was different about her. Now I "know" that at least some of them do. Maybe we should just get a wig- I don't want others to make quick judgments about her. What does anyone else think? Also, what are the wigs really like? Do they look unreal and still make it look obvious they are wearing a wig? Do they stay on for active kids who turn upside down. Does anyone know about the hip hair hats?

Comment by MONIQUE on April 12, 2008 at 1:43am

HI EVERYONE!! MY SON HAS HAD ALOPECIA FOR ABOUT TEN MONTHS. SOMETIMES HE TALKS ABOUT IT, BUT MOST OF THE TIME HE IS NOT PHASED AT ALL. WHEN HE DOES TALK IT IS ALWAYS VERY SAD AND DRAINING FOR THE BOTH OF US. YESTERDAY WAS THE FIRST DAY A KID ACTUALLY MADE FUN OF HIM..MORE TRAUMATIC FOR ME THEN HIM. HE DIDNT REALLY UNDERSTAND. BUT I DID. I AM DOING THE BEST I CAN TO MAKE HIM COMFORTABLE. BUT ADVICE ON WHAT YOU ALL DO WITH YOUR CHILD WOULD HELP US SO MUCH! I KNOW I CANT CHANGE THIS, BUT I WOULD LIKE TO MAKE IT EASIER IF POSSIBLE.

Comment by marie on April 6, 2008 at 5:32am

hiya all, im marie, mum to oliver hes had aa since he was 3 yrs old...hes now 9.....has lost hair its grown back, sometimes with various treatments, but at the mo,we havent used anything for over a yr.he has 1 big patch and about 4 tiny ones,(just hope the tiny ones stay tiny!!...!)........anyway, lovely to meet you all, take care marie.xxxxxxxxxxxxxxx

Comment by Brandy Forsch on March 31, 2008 at 12:18pm

Hello I am a 29 yr old woman of 2 boys and I have had Alopecia since I was 17 months old. Would love to chat and answer any questions parents may have bc I have had it for sooo long and I can tell you how the kids feel

Comment by Lori on March 29, 2008 at 10:54am

What is the truth about the theory that stress causes hairloss? I have been told over and over that this is a miss conception, but it always seems to pop up... ie. Britney Spears article that was posted previously.... any insight?

Comment by Cindy on March 28, 2008 at 4:07pm

How does a Sunday night work for a chat? Maybe we can try this Sunday at 9pm EST? Any takers? Cindy

Comment by Vicktoria (Katya's mom) on March 27, 2008 at 10:55pm

Yes, I think a parent chat would be great

Comment by Cindy on March 26, 2008 at 9:58pm

Does anyone want to try to get a parent chat going one night?

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