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Comment by Deeann on October 19, 2013 at 3:22am

Hello everybody.  I'm not active in this group, as I am an adult with alopecia, even though I was diagnosed at age 7.  I am currently AU, and am writing a book about inspiring people and their stories.  I have an entire section dedicated to kids and how they react to it, and are fully living their lives.  My own experience was not as positive as I wished, and I am hoping to hear from kids who have made a difference in order to encourage others. 

I've just finished my website for "Head-On, Stories of Alopecia" and it's up and running. Please check out www.baldgirlsrock.com to get in touch with me, or contact me directly at alopeciaoutlook@gmail.com.  Feel free to "like" me on Facebook if you have an account.  My page is "Head-On, Stories of Alopecia".

I'm looking for additional stories to add to the growing number of phenomenal ones I have so far. 

The alopecia community has always been so supportive of one another, and my hope is that word of this project will spread like wildfire. I look forward to hearing your story.

Comment by MychildhasAT on March 15, 2013 at 2:45am

Is there a support group in Las Vegas, NV?

Comment by Angie on February 7, 2013 at 3:03pm

If anyone knows of someone who lives in the DC or NoVA area and would like to join our alopecia group, please visit our Facebook page and request to join the group.

http://www.facebook.com/groups/canaaf/

Comment by Iris Mendez on February 6, 2013 at 10:42pm

today i feel :(

Comment by Caitlin Riley on December 8, 2012 at 8:53am

First Support Group Meeting in Ann Arbor!!!
Saturday, JANUARY 12, 2013
1PM – 3PM
Ypsilanti Public Library
229 West Michigan Avenue
Ypsilanti, MI 48197

RSVP caitm.riley@gmail.com

Comment by Camille Paddock on November 4, 2012 at 12:34pm

Hi everyone I started a page called Dare to Be Different and would love for you to take a look at it and tell me what you think! Its about me being bullied because of my alopeica! I've been called names like Freak and Hairless cat! I decided to take a stand againt bullying and raise awarness about Alopeica and Anti Bullying! my link is www.facebook.com/camille.paddock I hope you all like it! I am also the Jr. Ambassador for GAM Global Alopecia Mission and I'm selling shirts to help raise money for them to find a cure! The shirts say Dare to Be Different and the back says Bully Free! Right now I have about 1100 likes on my page and have sold about 150 shirts! I'm not sad about having Alopeica anymore; it is who I am it does not define who I am! I love being me! :)

Comment by Caitlin Riley on November 4, 2012 at 6:47am

Hello alopecia world community! I am starting an alopecia support group in Ann Arbor, MI. The group will have its first session in January. For more information, contact me by email caitm.riley@gmail.com or message me for my number.

Caitlin Riley
Support Group Leader
National Alopecia Areata Foundation

Comment by Chrissi on May 3, 2012 at 10:17am

New here...my 10 (11 next week) year old son has had AA since 2008 with only a spot or two every Spring. He has now lost most of his hair. I am devastated, looking at old photos of him makes me cry, I am angry...I am trying to be strong for him but I feel like I am not doing a great job. How do I reconcile with this?

Comment by Lia Roos on March 12, 2012 at 4:07pm

hi are there any teenagers out there? my 15 year old daughter would love a friend, we are in the uk so penpal, facebook? she has just got her first wig, loves it but feels a bit isolated.

Comment by suzanne on February 2, 2012 at 7:34am

Are there any parents with children around the age of 6. My daughter Emma is asking for a friend with Alopecia. We live in NY but even if we could just be pen pals that would be great.

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