Alopecia World
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Parents of Children with Hairloss
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Here you can talk amongst other parents about treatments, highs, and lows.
Members: 634
Latest Activity: May 17, 2020
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Discussion Forum
Looking for the kids with alopecia at Jenkins Middle School in Colorado Springs
Started by Sara and William. Last reply by Austen May 17, 2020. 2 Replies 1 Like
My son and I are moving to Colorado springs this school year to join his dad, who has been there for a year and a half now. My son has alopecia, and naturally I was concerned. Both times he's gone…Continue
my daughter doesn't want to wear her hats to school anymore
Started by Saida Z. (Ariana's mom). Last reply by andirnaat Dec 11, 2019. 13 Replies 0 Likes
This is my first time starting a discussion and i'm fairly new to alopecia world im sorry if im off topic but i am worried about my daughter she is 6 yrs old in first grade and has been wearing hats…Continue
Food Allergies
Started by Hillary Howard. Last reply by HarrisonPorshe May 2, 2019. 29 Replies 0 Likes
We have taken our daughter to a Naturopath and she was tested for food allergies. Sure enough she tested positive for quite a few (wheat, soy, dairy, white beans, eggs, cabbage, shellfish...to name a…Continue
Newly diagnosed child
Started by Alexandra. Last reply by Ebs Family Oct 18, 2018. 1 Reply 1 Like
Hello i noticed a week ago my daughter lost a clump of hair I thot she needed a hair treatment (my daughter is mixed) we got a treatment trimmed her hair and then 4 days later I found the bald spot I…Continue
Friends?
Started by Dusti. Last reply by VelmaJDennis Sep 22, 2018. 6 Replies 0 Likes
Hello, I am a mother of an 8 yr old beautiful little girl. She was diagnosed with Alopecia when she was 3 yrs old. It started with just bald spots and they would grow back, but last year she…Continue
Comment Wall
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Comment by Children's Alopecia Project on January 16, 2012 at 12:15am
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Zelda, the big difference this year is we are on the beach and incorporating Surf Camp!! Everything Rhonda said plus Surf Camp and more, this year is going to be hard to top! No, seriously, my wife and I have no idea where to have it in 2013 because this year is so cool!! www.alopeciapalooza2012.charityhappenings.org
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Comment by Rhonda Kelley on January 15, 2012 at 8:15pm
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Hi Zelda,
We went this past August and it was a great experience. The kids spent the days doing activities like canoeing, arts & crafts, archery etc. The parents went to break out sessions led by adults with alopecia, a doctor, other parents of kids with alopecia. We shared experiences, information, made lots of contacts and friends. The kids stayed in cabins with other kids in their age range. Some parents stayed in cabins but we stayed in a nearby hotel. We just drove to the camp everyday. It was a great experience and we look forward to the next one. Hope this helps.
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The Children's Alopecia Project is based outside of Reading, PA. If you have not done so yet, check us out on Facebook and on our website at www.ChildrensAlopeciaProject.org
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Comment by MOMofa6yo_AT on December 3, 2011 at 6:59am
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i am a mother of a 6 year old with AT from Encino, CA.
H E L L O!! :)
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Comment by Julie Kurth on November 12, 2011 at 8:52pm
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I am the mother of a 13-year old girl with alopecia in the Arlington, Texas area. Anybody else around here? We would love to meet other teens with alopecia.
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Comment by Angie on November 9, 2011 at 9:11pm
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Please share more of your son's story if you can.
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Hi all, I thought I'd let you know my son's story has had a happy ending. all of his hair grew back and has stayed! he was quite prepared for it to not grow back and I think the layed-back attitude payed off!
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Comment by Debra W on October 28, 2011 at 11:58pm
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@German Mama- thank you for the book recommendation. I went on to Amazon & ordered the book!
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@Melissa Lee- thank you for the website. I did look into them briefly. So far the closest group is over 1-1/2 hours away, but I really want my daughter to meet other children who suffer from AA, so I will probably make plans to attend a meeting. I have to look into if there is a closer group as well.
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Comment by german mama in NY on October 28, 2011 at 8:46pm
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Hallo parents!!! A beautyfull book for kids with or without Alopecia!
I let my daughter's teacher read this book to the the students (
and this every year) Princess Alopecia from Yaccov Peterseil.
Love Sabine
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