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Comment by Melissa Lee on October 28, 2011 at 3:13pm

Hi Debra,
Have you checked www.childrensalopeciaproject.org? They have a directory and support groups popping up in many different states. I just started one here in AZ. Meeting other kids & families dealing with alopecia helps a lot!

Comment by Debra W on October 28, 2011 at 9:55am

Hi everyone! I am new to this site & am at the point where I believe our family needs to stop ignoring my daughter's alopecia(the doctors kept saying she would grow out of it.) She started around 3 and would only have small random patches occasionally which always grew. Around April 2011 she developed two larger patches in the front of her head and other smaller random patches. Although it is finally growing back, I feel that we need to start looking at this health issue as a possible life-long part of her. I am interested in finding people who live in Southern Jersey that may want to get together from time to time, etc. My daughter has never met anyone else with alopecia and I think it is important for her to meet other children with the same issues. She is a beautiful and sweet girl and I want her to be comfortable with herself, hair or not, and I feel she needs to start gaining this understanding now rather than waiting to see if she continues with her hair loss.

Comment by Angie on October 8, 2011 at 2:54pm

@Lesa M - While it's okay to wonder if you're doing everything you possibly can, whatever you do don't blame yourself. Keep an open mind since alopecia is all about the unknown. Since it's auto immune, I feel the best bet is to build up the immune system. It takes a long time for hair to grow, but my son has lots of fuzz (started patches at 18 mos and lost all, incl. eyebrows and lashes by the time he was three). Now, he's four. His eczema has cleared up and he is thriving. I feel that I have had success a combination of the following (as suggested by numerous practitioners):

1.Use probiotics to calm down the immune system.
2.Cut way back on gluten products (or anything else that may cause allergic reaction).
3.Supplement with vitamin D.
4.Use digestive enzymes if digestive problems is evident.
5.Supplement with other vitamins and minerals as deemed necessary (everyone needs trace minerals to grow hair and certainly if you find deficiencies, which we did, you need to address).
6.Use anything else that you come across that could potentially build immune system. Try to be organic, natural and raw, including snacks.

I've recently been using food grade hydrogen peroxide (fghp) in the humidifier at night to help whenever he picks up a virus. Read about it...works wonders. I am very confident that my son's hair will grow back. Although, people want to just give up and accept, I truly feel there is always hope and as long as we are addressing the issue with a healthy, non-obsessive outlook, nothing we try will hurt. Seek and ye shall find!

Comment by Alia Ingerslev on October 8, 2011 at 2:10pm

I definitely feel the same. My son is great about having alopecia which has been coming and going over the last couple of years. Hé is happy and not afraid to meet the world as he is. But seing his bald spots while he sleeps makes me sad and wonder whether we have done enough. We have been using hair up for two years now but whether this is the reason for not losing All his hair or not I guess we Will never know. All I know is that when we started treatment it looked as if was going to loose it all within a month. He barely had any hair left. These days I am cutting his hair in some places while he is loosing hair in others. Frustrating but at least his condition is not permanent which gives us some kind of hope. We will always wonder why but for now we just have to accept all the emotions that come with it. Good luck. Seems that you have a strong and determined daughter. Best regards. Alia (mother of Kristian, 8 years old).

Comment by Lesa M - Jess's mummy on October 8, 2011 at 7:01am

Well its been a whole year now since Jessica lost all of her gorgous thick dark brown hair, eyebrows & lashes.. She really has been an inspiration to us. she remains very happy & confident.She has danced in the royal Albert hall in London, danced in competitions. performed in school plays. She is a star!! I still have low days thinking could I be doing something more for her. Is this normal? can,t help it I look at her at bedtime when she,s sleeping & cry. does anyone feel the same? x

Comment by Tennessee Mom on October 1, 2011 at 11:48pm

I just recently got approved by NAAF to start a support group in the Knoxville area. I have a 14 year old daughter with Alopecia Areata (diagnosed two years ago) who recently decided to shave her head. We are wanting to network with others with Alopecia. Our first meeting is November 6th from 6:30 - 8:00 at a church on the corner of 16th and Highland. Please message me if you want more information.

Comment by Terrie Goben on September 19, 2011 at 4:18pm

http://www.facebook.com/event.php?eid=211936208869675 Please, help spread Alopecia Awareness =)

Comment by Angie on August 6, 2011 at 7:58pm

Garfield,

I would be happy to chat with you. My son lost all his hair at 3yrs old. It started at 18 mos.

Comment by Garfield on August 4, 2011 at 4:28pm

Hi

I have an 11 year old son who's eyebrow started to thin in May was gone by June after a few appointments with blood and biopsy tests reviled Alopecia. What now? Looking to chat seems like I am hitting walls with no one willing to have a conversation.

Comment by Angie on July 8, 2011 at 5:48pm

Yes...try cutting out gluten or other things she may be sensitive/allergic to that is causing her immune system to overreact. We are having success with the use of probiotics (helps to calm the immune system). Also, supplement with vitamins and minerals which are needed for hair growth (if tests show she is deficient). We have started to reintroduce foods back to my son and happy to report no reactions so far. We can't wean them off all foods, especially if they love them, but we can give as high quality foods as possible and keep a positive attitude! Does wonders!

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