Parents of Children with Hairloss

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Parents of Children with Hairloss

Here you can talk amongst other parents about treatments, highs, and lows.

Members: 634
Latest Activity: May 17, 2020

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Discussion Forum

Looking for the kids with alopecia at Jenkins Middle School in Colorado Springs

Started by Sara and William. Last reply by Austen May 17, 2020. 2 Replies

My son and I are moving to Colorado springs this school year to join his dad, who has been there for a year and a half now.  My son has alopecia, and naturally I was concerned.  Both times he's gone…Continue

my daughter doesn't want to wear her hats to school anymore

Started by Saida Z. (Ariana's mom). Last reply by andirnaat Dec 11, 2019. 13 Replies

This is my first time starting a discussion and i'm fairly new to alopecia world im sorry if im off topic but i am worried about my daughter she is 6 yrs old in first grade and has been wearing hats…Continue

Food Allergies

Started by Hillary Howard. Last reply by HarrisonPorshe May 2, 2019. 29 Replies

We have taken our daughter to a Naturopath and she was tested for food allergies. Sure enough she tested positive for quite a few (wheat, soy, dairy, white beans, eggs, cabbage, shellfish...to name a…Continue

Newly diagnosed child

Started by Alexandra. Last reply by Ebs Family Oct 18, 2018. 1 Reply

Hello i noticed a week ago my daughter lost a clump of hair I thot she needed a hair treatment (my daughter is mixed) we got a treatment trimmed her hair and then 4 days later I found the bald spot I…Continue

Friends?

Started by Dusti. Last reply by VelmaJDennis Sep 22, 2018. 6 Replies

Hello, I am a mother of an 8 yr old beautiful little girl. She was diagnosed with Alopecia when she was 3 yrs old. It started with just bald spots and they would grow back, but last year she…Continue

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Comment by Cindy (Duncan's Mom) on April 16, 2011 at 9:33am
Tonya, we are in Knoxville, TN. I would love work with you on doing something in TN. I have not located many kids around us. My little guy has had alopecia since 18 mos old. He is now almost 7. He has a great attitude. Kids can be cruel, but so far we have addressed it before school by sending information to classmates and parents. The thing that bothers Duncan the most are people staring in public and most of the time it is adults! Have you read about the different camps? We are considering going this year. Handgun there! I will pray for you both. It is very hard at first because as parents we want to be able to fix it and make everything perfect for our children. It does get better and God can and will give you strength!
Comment by TONYA HATCHEL on April 16, 2011 at 4:29am
Does anyone know of any kind of meeting or event in Tennessee for kids with alopecia? My son was just recently diagnosed and i think he would really benefit from meeting other kids with this condition. thank u
Comment by Lisa on March 6, 2011 at 11:54pm
Thanks, Kate...I'll look into the petite gripper...I was looking at hatswithhair.com today...this looks very cool for this summer...also, calling wigsforkids tomorrow. Last week I took Nina to my acupuncturist who started cold laser therapy on her scalp...I feel like we have to explore the non-Western medicine side of things...she's had steroid shots, and really doesn't want to do those again, plus, we didn't see much of anything, even though it's been a little over a month. He also did muscle testing on her, which can tell any food, or any other kinds of issues, such as parasites, or digestive issues. It also can tell certain things about emotions, for which they make up a homeopathic remedy...I know it all sounds a bit hippie-dippie, but this guy cured my tendonitis years ago and it's never come back!!!...Anyway, Nina's at the point where she's ok with looking for wigs and/or headbands with hair! Thank you all for being here...:)
Comment by Kate on March 6, 2011 at 10:07pm
HI Lisa - Alyce mentioned the petite gripper - my sister just got the gripper and is soooo happy with it....she has had many pieces over the years, but this seems to be her favorite....I haven't seen her yet ( she lives in Va.), but she says the quality of the hair and the comfort/security is great....I think it would be worth checking out...she would have been so happy if there was such a piece when she was young - would have lessened the stress she felt with her hair loss. Anyhow, good luck with your search and let me know f you have any questions, I can ask my sister for you....:) Kate
Comment by Rhonda Kelley on March 6, 2011 at 8:29am
I'd like to add that the people from wigs for kids in atlanta are some of the nicest people I've ever met. They are such a blessing to us.
Comment by Saida Z. (Ariana's mom) on March 5, 2011 at 10:18pm
My Daughter is 7 she got hers from wigs for kids and she uses it everyday to school it looks very real.
Comment by Lisa on March 4, 2011 at 12:20pm
Hi, all...Just asking who anyone would recommend for real hair wigs for my 10 year old daughter!
Thanks!!!
lisa :)
Comment by Monique (Mom) on February 19, 2011 at 5:25pm
abcnews.go.com/Health/Wellness/baldness-alopecia-reversed

Exciting news. Researchers reversed Alopecia in rats.
Comment by Alyce Jayne Martin on February 2, 2011 at 7:34pm
I lost all my hair at 4 and then again at 10. It never came back after the age of ten.

I had to wear jet black synthetic wigs as a 10 year old. Back then, the styles were for older women. Definately, not children.

There is an alternative out there. The petite gripper for children. They can do activities such as gymnastics, running, dancing and not worry about it coming off. There is also NO tapes or glues.

It is for children.

I wish this would have been available for me. It would have saved a lot of embarassments and shame.

Let me know if I can help. I do know what your children are going through and at each age group.

Thanks for listening.

Alyce
Comment by Monique (Mom) on February 1, 2011 at 2:19pm
Hi Lisa. Yes. I plan on sending home information and a picture to show kids and have the parents explain. I am an elementary school teacher. Gabby will go to school eventually where I teach. This will help. I am doing a fundraiser each year in honor of Alopecia and Gabby. The kids are learning each year. When she gets there, they will already know of her. She hasn't entered pre-school yet. She will this summer for camp a few days a week. I plan on educating as many as possible. I don't know when Gabby will realize her difference, but I hope it is with me around.
 

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