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Comment by Casey on September 13, 2012 at 8:08pm

Oh! and im seeing the same doctor at sunnybrook! Im on the anthralin treatment

Comment by Casey on September 13, 2012 at 8:02pm

@Amanda,

there is a support group that meets at the north york civic center. Ive never gone because my boss and his wife went (randomly their daughter has it too!) and i found that a bit too personal. Id be happy to go with you! Ill let you know when the next one is Nov 17th

http://canaaf.org/alopecia-support-groups/

No idea about scarring alopecia- sorry!

Comment by Amanda on September 13, 2012 at 7:00pm

Cj ... Can't wait to meet you too! I want to desperately start something in Toronto for us. Maybe we can consult and start something like a support group or anything in both Ottawa and Toronto?

Dmf ... I am seeing Dr. Miller-Monthrope at Woman's Collage and Dr. allhedy at Sunnybrook.... Love them both!

Casey, Dmf, and other torontonians ... Would love to know if you have any resources and support sources in Toronto. Especially but not limited to for LPP/CA/Scarring Alopecia (personally) ... We are pretty rare. One of my doctors said that she was unaware of scarring alopecia support and that I should start something!

Comment by CJ- Christine from Ottawa Canada on September 13, 2012 at 4:40pm

Jade - I will check out Pierscianowski. I havent had much luck with the other two who really don't seem to get it.. although they think they do.
Amanda. I'm so looking forward to meeting you at the conference!

Comment by CJ- Christine from Ottawa Canada on September 13, 2012 at 4:37pm

HI all,
If you are a member of CANAAF, ( or if you want to be) you can get a discount code for the conference. It seriously will be awesome. The free symposium on the friday night is going to be targeted somewhat to psoriasis patients, because its sponsored by Abbott who have a psoriasis drug, but should be good anyway.
The conference - at $125 ( discounted - early bird) for 2 days includes 2 sessions specifically on Alopecia, will have top doctors like Jeff Donovan there, skin screenings, sessions on staring, sexuality, and self esteem. also sessions for family members/partners. The $125 ( discounted rate includes lunches and a superb dinner Saturday with speaker Alvin Law ( youtube him - he is awesome) .
check out this youtube video at
http://www.youtube.com/watch?v=_S74MyA_HFA

Also if money is tight - there is a financial aid fund.
the CSPA is a by patients, for patients non- profit. we aren't trying to make money - in fact will lose money - but are putting this on as a way to serve all of us who grapple wtih these diseases.
this will be a place you can walk around without hair and feel at home!
I know I am unabashedly pitching this - but its the first time we've ever done something like this for patients like us. Typically people with skin and hair diseases are dismissed and even dismiis the impact these diseases have on their lives. We think that by getting together with others we can offer something bigger and we will all feel like we are not alone.
let me know if you want to come. I, for obvious personal reasons, want to see a huge bunch of alopecians there.
Christine

Comment by Casey on September 13, 2012 at 4:00pm

Hello! Just joined the site. Im from Toronto and I have full AU with no eyelashes, eyebrows, etc.

Comment by dmf on September 13, 2012 at 1:27pm

Hi Jade,
Oct 12-14 at the Marriott Hotel downtown near the Eaton Centre. Google "Canadian Skin Patient Alliance". It is good to read that you found a doc you are comfortable with. It is a very hard thing to find when it comes to alopecia. In my experience, too many docs are uninformed and many are not very sympathetic.

Comment by Jade Hawkins on September 13, 2012 at 1:08pm

New ontarians, Love it!
CJ, Im not sure what dermatologists you have seen but I see Dr. Tad Pierscianowski in Ottawa. He's wonderful, its been a few years sence Ive gone to him (due to my busy schedule) But for nearly 20 years I've only felt comfortable around this particular doctor. As for the CANAAF seminars in T.o, I've heard about them, but never really looked into it, October? Does anyone know the day and place?

Comment by dmf on September 11, 2012 at 9:34pm

Hi Everyone!
I am also in Toronto. I have AA. Nice to know others are out there and so close by. I've had AA for 6 years but just recently got an actual diagnosis.

Amanda: I'm wondering which docs you've seen at Sunnybrook and Women's College and what treatments they've tried to help you make progress?

CJ:Thanks for sharing info about Canadian Skin Patient Alliance. I don't think I'd pay to do the entire session but I did notice there's a free seminar. I might attend that.

Jade: Thanks for starting this group.

Comment by Amanda on September 11, 2012 at 8:45pm

Cj, I have gone to Sunnybrook Hospital and Woman's College Hospital here in Toronto. I am pretty happy so far. Doctor said I have made progress! I looked up the skin conference in Toronto this October and I am def signing up.
Anyone else interested?

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