Frontal Fibrosing Alopecia Discussions (350)

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Medication Break - 3 months on

Hello friends, thought I would update you on my med break. I am now 3 months on after stopping Cellcept and Finasteride (after previously t…

Started by Jacqui

4 Dec 18, 2017
Reply by Jacqui

Hi Ladies

I was diagnosed a few months ago. It was a hard pill to swallow, still is. I had thick long brown hair and bangs. My bangs are wispy now an…

Started by Adie503

8 Dec 18, 2017
Reply by Halfbakedwho

Has anyone had/tried cortisone shots to scalp?

 Hello everyone. I am a 34-year-old with frontal fibrosing alopecia. Diagnosed a year ago I have tried a few medications but they have made…

Started by LVL

20 Dec 16, 2017
Reply by lorrie

biospy results

hi FFA people, I am new at all of this but I got a biopsy done and it came out negative for FFA and rather it is saying that its non-scarr…

Started by Erika B

2 Dec 16, 2017
Reply by Jacqui

Turn Over of Specialist Dermatologists!

Does anyone know why there is such a high turn-over of specialist Dermatologists in the UK NHS? (National Health Service) Since been diagn…

Started by Airam-FFA

5 Dec 2, 2017
Reply by NA

Clobestatol

Just got back from my visit to dermatologist. I have been on clobestaol for 7 1/2 weeks & she said it has worked on stopping the inflam…

Started by Donna

0 Nov 28, 2017

Changes in Hair from Rogaine?

Hi All, In addition to taking Dutasteride, I also use 5% minoxidil/Rogaine. At first I was using it twice a day, then once a day, and now I…

Started by Jess

2 Nov 18, 2017
Reply by AnnieMay

Have you heard of Platelet-rich plasma (PRP) therapy?

I was reading on another group a post by a lady who had lichen planopillaris. She asked her dermatologist to try Platelet-rich plasma (PRP)…

Started by illustr8r

8 Nov 17, 2017
Reply by Dgbarton

Just diagnosed with FFA

I have been losing hair for about a year I’m guessing. This last spring is when I noticed my sides at the temples were receded far back tha…

Started by Donna

43 Nov 11, 2017
Reply by Nancy79

Hormone Therapy/ Menopause

I have been in menopause now for about 5 years- I have never used hormones because all the medical reports/news/etc... said it was so bad f…

Started by Minter

23 Oct 26, 2017
Reply by Airam-FFA

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