Frontal Fibrosing Alopecia Discussions (350)

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random thoughts

Well our stories are all so similar I could almost interchange mine for any of yours. Eyebrow loss, odd scalp sensations, skin issues, prog…

Started by Beez

32 Aug 28, 2017
Reply by Airam-FFA

Any one takes Viviscal???

First time I've heard of it today. I don't think it can regrow hair we lost, but maybe help from thinning further? My friend's hairstylist…

Started by SCS

5 Aug 17, 2017
Reply by Ellen

Reload Bio Hair Roots System

Has anyone tried a product called Reload Bio Hair Roots System?  I talked with someone who is in my Wen hairloss support group who has near…

Started by Artygirl

0 Aug 7, 2017

Topical steroid

What do people think about using the topical steroid?

Started by WJ

2 Aug 3, 2017
Reply by illustr8r

New information and concerns about elidel.

I am sending a link that I saw this morning on WebMD regarding elidel, one of the topical medications I have been prescribed for my FFA. I…

Started by DW

1 Aug 3, 2017
Reply by DW

How many people have additional forms of alopecia?

I was diagnosed with FFA in March and LPP (after going to the dermatologist about diffuse scalp pain) in April, but only recently developed…

Started by akb

9 Jul 22, 2017
Reply by akb

Biological medicin towards FFA?

Hello, I saw my dermatologist today and unfortunately he could not  see any improvement or stabilization. At the moment I´m on Plaquenil,…

Started by Agneta

23 Jul 14, 2017
Reply by Airam-FFA

Alopecia Wig Specialists in Columbus, Ohio?

Does anyone have experience with a wig specialist in Columbus, Ohio, who is experienced in dealing with FFA? WJ

Started by WJ

0 Jul 11, 2017

Alopecia Wig Specialists in Columbus, Ohio?

Does anyone have experience with a wig specialist in Columbus, Ohio, who is experienced in dealing with FFA? WJ

Started by WJ

0 Jul 11, 2017

Denial, or up and down

I notice that many of you take pictures. I am very reluctant to take pictures. I really don't want to know - to follow the sad progression…

Started by Halfbakedwho

3 Jul 3, 2017
Reply by Minter

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