Frontal Fibrosing Alopecia Discussions (350)

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Interesting article on hair loss and skin regeneration for burn victims

I just thought this was interesting and may have an application in the future for alopecia sufferers. http://www.iflscience.com/health-and

Started by LoriO

0 Aug 15, 2015

Feelng defeated by the FFA

I'm just feeling completely depressed by this stupid disease!  Soon the acupuncture supervisor who gave me hope will be back from being awa…

Started by DragonandFox

0 Aug 1, 2015

Acupuncture

I thought I'd post this comment I made in another thread.  I was recently assigned a different Acupuncturist since the other left the pract…

Started by DragonandFox

4 Jul 14, 2015
Reply by DragonandFox

Please help me understand :(

Hi LadiesSo I first noticed my hair loss last June and since then i has lost 80% if my hair, lashes and eyebrows also badly effected. I sea…

Started by LittleSadEyes

6 Jul 14, 2015
Reply by DragonandFox

CARF-Cicatricial Alopecia Research Foundation

Are you aware of CARF?  Anyone with FFA or other types of scarring alopecia can become a member. CARF is holding a doctor/patient conferenc…

Started by Wyobalance

8 Jul 7, 2015
Reply by Wyobalance

Haircuts and styles

So... Wondering if anyone out there would be willing to share the hairstyle they use to cover areas of FFA. I know some folks are private a…

Started by Lo

6 Jun 28, 2015
Reply by DragonandFox

Natural or Organic Products

Has anyone has success with using organic aor natural shampoos, conditions, supplements, etc? That is any success in slowing the progressio…

Started by Ann Wilson

12 Jun 28, 2015
Reply by DragonandFox

Having some treatment success-there is hope!

I have FFA/LPP specifically.  I lost eyebrows 10-12 yrs ago in my early 30's- very slow progressing.  I lost my eyebrows in my early 30's o…

Started by Katy M.

22 Jun 26, 2015
Reply by Lo

Agressiveness of hair recession

Hi all!  It seems as though my FFA is very quickly progressing.  Is this because I just started treatments?  Or am I a double winner, both…

Started by Jen S.

9 Jun 25, 2015
Reply by MnM

New here

Hi my name is Rachel and I'm 30 years old. I recently was just diagnosed with frontal fibrosing alopecia the end of April. My hair loss sta…

Started by Rachel218

28 Jun 24, 2015
Reply by April

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