Frontal Fibrosing Alopecia Discussions (350)

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New to FFA

Hi all, I have only this week been told by a dermatologist that I have FFA and my only options are to take a product called Hydroxyxhloroqu…

Started by JAM

22 Jan 6, 2019
Reply by NancyinDenver

New diagnosis

Hi All, This is my first post to the group and I’m so glad I found you.  I have recently been given a tentative diagnosis of FFA and I’m…

Started by Lu

7 Jan 2, 2019
Reply by J4M2005

FFA sores on scalp

sorry for the repeat post. I posted earlier but can’t find it,  anyway, I’ve noticed I’ve got some sores on my scalp in the back of my head…

Started by Donna

3 Dec 30, 2018
Reply by Louise

HELP! Insomnia source? Could it be finasteride and/or Clobetasol?

I've been using Clobetasol on my scalp every night for over a year (+ shampoo) and been taking low doses of finasteride since last spring e…

Started by DragonandFox

6 Dec 28, 2018
Reply by JannyLi

Have FFA & now red bumps on scalp

is anyone experiencing this. I have been getting red itchy bumps on hairline lower back of my head. I thought it was my shampoo or conditio…

Started by Donna

1 Dec 17, 2018
Reply by Jan

Hair color and permanent waves

Does anyone have a hair color product and/or do permanent waves? My limp, fine hair needs something. I have been using the CBD oil, and hav…

Started by Anonymous

0 Dec 16, 2018

Please reply if you have used sunblock prior to FFA diagnosis. Having an aha moment!

Gang, 1) I believe that we with FFA have some sort of genetic tendency that is within the autoimmune spectrum.(I was diagnosed 1/2016. I a…

Started by pauliegirl

42 Dec 15, 2018
Reply by Overthis2018

Get Ahead of Hairloss Event plus new information on FFA

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK goi…

Started by Liz

10 Dec 6, 2018
Reply by Overthis2018

More Tentative Evidence of a Cause: Sunscreen/Titanium

I just thought some of you may be interested in the article that will soon be published. It is a case study of one woman with FFA. They ana…

Started by Jess

5 Dec 6, 2018
Reply by Overthis2018

Someone please help! Is this early FFA?

Hi. I’ve been trying to figure out my hairloss for quite sometime now. I had A baby 15 months ago, yet my hairline has not grown back. It’s…

Started by Hailey

13 Nov 25, 2018
Reply by Miss Mymble

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