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Comment by Minter on February 10, 2018 at 7:52am

Same here, it is not just hair!  I often think- if it just stops right now, I'll be able to deal with the loss and be happy, just please make my hair stop disappearing right now, today, please, please, please.  But it never does, it just keeps moving along, creeping slowly over my scalp like some horror movie. The day I hate my hair the most is the day I wash my hair, because it is at it's most obvious when it is wet and freshly washed.  Once I get it dried and put all my magic potions & powders on it then I can do my smoke and mirrors thing and pretend it is not so bad.

I do think I am finally going to make the call for an appointment to give up on my my 'just above the neck long layered bob' and go for a long shaggy sort of pixie cut to disguise the thinning on the top of my head and so I can get pretend side burns cut that I can pull forward in front of my ears and use product to keep them there. My sides are made even worse because the little patchy hair that is there was shaved when I had the side pieces in a couple of months ago and it is so very slowly growing out.  But saying that , I am so sick & tired of figuring out ways to "fix my hair" this FFA can really do a number on your self esteem for sure.  Between my hair, recovering from a painful surgery and now marriage problems I have managed to gain a fair amount of weight and feel mightily sorry for myself.  This is not how I want to live my life and it is time to make some changes!

Comment by Liz Lov on February 10, 2018 at 1:39am

Exactly, it's NOT just hair!
It REALLY takes it out of you emotionally. I look at myself just a few years ago, looking 'normal' and compare to now, just SHOCKING.
I first heard the dreaded ffa words when I went to my dermatologist for skin allergies 4 years ago and asked her what she thought about my thinning hair at the front, she said what it could be, " I may have WHAT?"
I couldn't remember or pronounce those three words, had never heard of it so I asked her to write it down. Then I googled it when I went home!!!! WOW!
Biopsy confirmed it shortly after.
Been slowly going through all the various stages of emotion since then!
Looking at photos, I had a traumatic few years during the ill health and subsequent passing of my beloved elderly parents, most stressful time in my life. Seems to have started about that time and crept on slowly.

Comment by illustr8r on February 9, 2018 at 11:18pm

My pixie cut is hanging in there but I can see on my sides where it’s thinning. I look and I look again at this line between thin hair vs. good hair. This line I see-is that where it’s going to finally stop and burn out I wonder-every friggin day I wonder. I’m sad today because I saw photos of myself just 3 short years ago when I had hair- hair with bounce and elevation. Shocking how much hair I’ve lost all over. I swear this stupid condition just knocks the wind out of you some/most days. “It’s just hair”...no, no it’s not. :(

Comment by Halfbakedwho on February 9, 2018 at 2:44pm

One of those scarier days for me, when I notice the bald spots growing on top of my head, and worry about finding a solution to hide this hot mess. It’s progressing for me here too, and it’s scary. But what feels more frustrating right now is the lack of options for covering this up. If I could foresee a reasonable way to cover my hair with extensions that doesn’t involve too much fussing around with clips and sewing (I don’t know how to do those things) then I’d feel reassured.

CurlyK - I would definetly do what you are doing, if only I could find someone not intimidated by the crazy curly hair. Sad in Chicago - I too just noticed this past week that I’m losing hair at my nape too. My mother says « this is just so weiiiirdd » - no kidding. I don’t know if you guys have this numb sensation where you’ve lost hair? The white patches are numb.

Sometimes I am just in such denial, I think I’m making it up, or somehow I could « make » it go away. Don’t ask me what logic that follows - I really don’t know. Maybe it’s sort of like when you get a cold, and you think, « oh hell I’m going to go out anyway » and then you feel fine, then the cold is gone. I think, « nah, I’m going to make like this hairloss FFA thing is over ». Oh - but it’s not, it’s not... as if mind over scalp could magically work. But my mind is under my scalp, and the scalp has its own ideas these days. 

Comment by Liz Lov on February 9, 2018 at 3:24am

@Sad in Chicago- so sorry to hear of your progression. Your words echo my own. 'Beyond horrible and such a frightening site when not wearing anything'. For me, now a full time wig wearer,  it has transformed my life. Took SO SO long to accept that my own hair was never coming back, now I quite enjoy having different looks. I might also look into bonded hair but so far the wigs are working well. 
@CurlyK. are you in the US or the UK?
Very interested to hear more of how your solution works for you

Comment by Jules Australia on February 8, 2018 at 10:49pm

* Curly K - as I have replied to you previously, your hair looks absolutely fabulous, so natural looking. I wanted to ask you if you are still experiencing any progression of hairloss since you started with glued on hairpiece 18 months ago? I do remember you describing how it was done, that they have to shave some of the head before gluing on etc& that you mentioned you haven't ever experienced much tender or itchiness * Sad in Chicago - I am sorry to hear you are having more loss & having troubles with scalp feelings. Also finding of the seemingly never-ending progression of loss is forceing you into having to reassess changes to alternative cover-up solutions....I can see how much this condition can affect the day to day lives of so many women, as it progresses; seems as tho many find a solution they are comfortable with, then nxt thing made to feel something different needs to be tried. Recently Helen (from NZ) described her solution of a Freedom wig (whole head needs to be shaved) which was working well for her....this may not suit everyone of course, but thought i'd mention it in case you hadn 't seen the post.

Comment by CurlyK on February 8, 2018 at 5:55pm

 Sat in Chicago, I identify with your fear and frustration. I have worn a hairpiece glued to my scalp for over a year and a half now. It was incredibly difficult that first day and it took me a while to really get used to it. Most days now I don’t even feel it as it’s become such a new normal for me. It is stuck on there pretty good so I treat it like  it is my own head of hair. It has been worth every penny for me to have my self-esteem back. I receive way more compliments now than I ever did my entire life with my own real hair. It is crazy! But I love just not having to worry about my receding hairline and wondering what everyone’s thinking.  If you or anyone else decides to try this, feel free to reach out to me. Getting a head of hair was Traumatic after not having nice hair for years. I cried and cried and cried. But it got a lot better. I promise! 

Comment by Sad in chicago on February 8, 2018 at 4:46pm

Hello all, this is Sad.  I have not been stressed -- only specific stress of late is extreme loss of hair I am experiencing again.  I don't get it.  As I said a couple of weeks ago, now noticing at nape of neck as well, plus forehead and sides of head  immensely diminished.  Beyond horrible and such a frightening site when not wearing anything.  I simply cannot stand it.  It has taken all the fun out of anything like being outside, going on vacation, being spontaneous, etc.  I know you all relate.  I have been thinking about bonding so I don't need to wake up and look at myself and go through this everyday before I get "dressed" as I call it, which includes adding my piece.  However, I am so anxious to get it off at night, the itching, the tape, the discomfort leaning back against a bed rest or couch where the clips in the back of my head are, that I cannot imagine something like this glued to my head for any period of time.  I might discuss with hairdresser/wig/piece person I go to again.  I trust her.  This is soooooo hideous and beyond stupid, I can't stand it, I don't know what else to do, and the joke is that when wearing any of my pieces, even tho to me they look "wiggy" sometimes, I receive so compliments on how well I look when I am out in public.  I know it shouldn't matter, that it is nothing more serious, that since I look well I should feel well, but....not happening!

to MnM - do you really need names in Chicago?  I have two, Jerome Kraus and Salon for You.  I also went to the Hair Institute on Washington downtown, but that was not for me.  

Comment by Christi Q. on February 8, 2018 at 3:55pm

Short story.....went to the emergency room about a month ago thinking I was having a heart attack!  Good News!  I wasn't!  Anyway, it was VERY stressful to say the least and I just KNEW my hair was going to take a BIG hit because of the stress.  Sure enough, 4 weeks later and I'm in bad shape.  I have been SO steady for the past year and that darn stress episode got me all screwed up again!!

Comment by ammie on February 8, 2018 at 11:41am

I keep getting that same message about the site being not secure but today I got on with no issues at all. Glad to I wasn't the only one. I hope everyone is doing well. 

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