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Comment by Rachel Germany on February 2, 2018 at 11:35am

Jess thank you for the trip about And ally natural. I have taken a look and I will probably place an order.  

Comment by Donna on February 2, 2018 at 12:16am

AnnieMay & Jess.  I have started using coconut oil as my facial moisturiser.  A little under my foundation also & it gives a dewy look. You can add lavender essential oil or rosemary is very good for skin.  I’ve been giving myself a scalp conditioning treatment with castor oil once a week. Suppose to help with hair growth.  But with FFA we know the hair that has been lost won’t grow back.  But makes my hair very shiney & soft. I don’t wash my hair every day but when I do I just bought Majestic Pure shampoo with 14 DHT Blockers. Nourishes thinning hair, strengthens.  Suppose to add volume but it doesn’t for me. I also bought Majestic Pure Argan oil conditioner.  Both from Amazon if you want to check it out.

I watched several utube videos on the castor oil.  It has a lot of benefits.  Also google home made or all natural skin creams.  I’m weening off all store bought moisturisers & im going to find a different  sunscreen for this summer. 

Comment by AnnieMay on February 1, 2018 at 11:31pm

Thank you Jess!

Comment by Jess on February 1, 2018 at 11:24pm

Hi, AnnieMay. I'm the one that mentioned the basketball-like skin texture. I also have a shiny (not greasy) forehead. It bothers me about as much as the hair loss. I have recently found a moisturizer that I like quite a bit. It definitely helped my skin to feel smoother to the touch, but it still looks about the same : (  It's Andalou Naturals 1000 Roses Night Cream. I got it on Amazon for around $16.00. Andalou Naturals makes a number of natural skin scare products and the "1000 Roses" line is for sensitive skin. The night cream scores a 3 from EWG and the day cream scores a 1. The night cream is thicker, and I like it better, but you can order a sampler of the 1,000 roses line for aroudn $15.00, which includes, day cream, night cream, toner, etc.

Comment by AnnieMay on February 1, 2018 at 11:10pm

Not sure what I would do without all of your support so thank you. I do wonder if other people are dealing with some of the skin issues I mentioned? and what you're doing to help things? are there facial moisturizers that you like with out SPF??

Before all of this I had been considering have a mini facelift. Has anyone dealt with this and FFA?

Comment by Afraid on February 1, 2018 at 1:45am

Thanks everyone for your continued support x 

Comment by Plf on January 31, 2018 at 6:00pm

Hi Annie may and afraid, although only recently diagnosed, a FFA diagnosis as this stage is for life, I don't think anyone that doesn't have it can understand how it impacts on your life daily, so little knowledge re what causes it, treatment s that may or may not halt the progression and yes there are wigs, but yes if you love the beach ..wigs don't help, hang in there your not alone..but this doesn't help the bad days where it all become so consuming, continue to be strong, and thanks again for your honesty, it really helps to here other people's thoughts, because at time I feel I need to get over myself it's not life threatening..but in the end to impacts on everything!

Comment by illustr8r on January 31, 2018 at 5:34pm

@AnnieMay and @Afraid. I’m sorry that you are having bad days with dealing with this stupid disease. When I was first diagnosed I cried and cried. It’s just the most odd condition to accept and to explain to others-who generally blurt out “oh,you can just wear a wig” not clearly understanding the building trauma that led to first getting diagnosed (why am I losing my hair?!?) to the sadness and shock of getting diagnosed (I’m going to lose my hair?!?). Again, it’s okay to be upset. It took me over a year to “accept” (ha!) this and I still have bad days-just not as many. Hang in there. XXOO

Comment by Rachel Germany on January 31, 2018 at 5:24pm

  I'm trying not to let stress have a chance, but it does exhaust me at times.  We are not defined by this condition but by the way we handle it.  People don't see us as we see ourselves and so I like to console myself with this thought. Stay strong everyone! X

Comment by Afraid on January 31, 2018 at 1:49pm

I used to have such a zest for life and loved holidays.  I wonder too how holidays will ever be the same with this life changing condition. I don’t seem to have much ‘respite’ at the moment from this condition.  I woke with a burning and stinging sensation on my scalp through the night and felt quite desperate.  Does this mean I will lose Hair in this area too? The progression seems rapid and relentless.  I’ve also noticed skin texture changing.  Is there anything else we can do to limit the damage? I’m beginning to wonder if this condition will ‘break’ me.... I’m not usually the type of person to entertain such thoughts. 

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