Alopecia World
www.alopeciaworld.com
Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 602
Latest Activity: Jul 14
Discussion Forum
CARF Conference 2018 Notes
Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Man with FFA. New member.
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Comment Wall
Comment
-
Comment by Minter on October 7, 2016 at 8:52pm
-
I didn't realize the Joan Rivers came with a brush, yes that would make it easier along the hairline... I apply bare minerals bronzer powder with a brush along my hairline sometimes, why have I never thought to try BnB using a brush at the difficult to apply hairline/temples area! Bu, I am so so happy to hear that this is helping you, it is amazing how it works and covers up the shiny areas & I agree, Lauren has awesome info!
-
-
Awesome Bu! I am so happy you are happy with it :-D
Question for you, I did look at the Joan Rivers Great Hair Day, how do you like it and how do you use it with the BoostnBlend?
Also, just back from my monthly Dermo. visit, got my usual steroid injections along the hairline & eyebrows, this time she diluted it a bit and injected on the top of the scalp also. I am going to stay with just topicals & steroid injections for the time being as I am having such bad reactions to the minocycline and plaquenil :-/
-
-
Bu and Minter, I'm glad you found the blog helpful. I'm happy to share a good resource!
-
-
Gracie T, it is because of you that I found it, thanks for posting the link :-)
-
-
Minter, I'm glad you like the Boostnblend. I think I will give it a try!
-
-
BU, I think you will be happy with it too! It took a few days for me to get the application down- this is what I do, I give my hair a quick shot with the blow dryer first and then shake the powder on the top of my head at the part, along my hairline and above my ears & blend it in along with the roots, then I do a double check with my hand mirror to make sure I got it all the shiny spots & reapply if I missed any, then smooth my hair all out (it gets a little wild after all the blending) & spritz hairspray lightly at the roots- my hair does look fuller too after using this, haha I am always looking in my rearview mirror now and liking what I see, no more shiny scalp!
-
-
Oh now I understand. Thanks for sharing. I am not ready for shaving, I still have enough in back and on the side up towards the crown for a clip in. I will keep you all posted on the custom piece made from a mold that will give me a hairline and "sideburns"..... waiting anxiously.
-
Comment by Brenda, IL US on October 1, 2016 at 11:00am
-
Bu US you're welcome. I hate to get my head shaved back to the crown so I'm not going to watch. I haven't shed any tears yet but I might that day. The crazy thing is I have lots of new hair growing at my temples but the sides, above my ears, and top of my head to my crown keeps receding and scarring. Strange disease.
-
-
Bu US it is Kincaids Salon. 1300 S.3rd St. 812-232-5106
-
-
Yes Curly K, it's human hair. I saved quite a bit by ordering 2 at the same time. I just hope I like the color I chose, but they can be colored too.
© 2024 Created by Alopecia World.
Powered by
You need to be a member of Frontal Fibrosing Alopecia to add comments!