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Comment by Anne55 on July 29, 2016 at 7:57pm

Hi CurlyK,

I also had horrible dry eyes for the longest time. after I gave up gluten and sugar and treated for Candida ( Candida Cleanse supplement) the dryness went away.

Hope that helps
Anne55

Comment by CurlyK on July 29, 2016 at 7:51pm

I've lost my eyebrows but has anyone else struggled with dry eyes? A few years ago I went to an ophthalmologist who told me to wash my eyelids with baby shampoo and use warm compresses at night which seemed to help. He also told me to wash my face with baby shampoo as it looked like I had some early signs of rosacea! Interesting that rosacea is linked with FFA. Just wondering about the dry/red eyes and if anyone else had this issue.

Comment by Anne55 on July 22, 2016 at 9:23pm

Hello everyone!

I've just joined the forum and its a comfort to know I am not alone in my struggles. I've had receding temples for 10 years. Three years ago I noticed my bangs receeding as well. I had never heard of FFA. Finally got in for a biopsy, the dermatologist is positive it is a combo of FFA and alopecia. Currently I have lost close to 2 inches of bangs and 3-4 inches of my temples are bald. Eyebrows almost all gone. I finally ordered a clip in topper but I am still afraid to go out of the house with it.
Some comments
I don't use sunscreen on my face
I did have Rosacea 10 years before hairloss.
I tested with a gluten sensitivity and feel that high sugar makes my scalp itch and become painful yet my scalp has never been inflamed or red.

Has anyone researched if high sugar diet has negetive affects, or does it matter? I eat very healthy now, no gluten low sugar, vegetables.

Also I would love some input on best toppers, human hair, or synthetic. Does anyone have a synthetic topper they really like?
I wish none of us needed to be on this forum, but I am thankful to join and add any support or encouragement I can to all of you.
Anne

Comment by Kikibob on June 17, 2016 at 5:56pm

MJ... I think we all have a combo of individual contributing factors... but it interests me to know that you also stopped tamoxifen, had tamoxifen induced menopause and then FFA.  That was my situation too.  At first I thought it was only loss of my eyebrows and I attributed it to the tamoxifen.  Maybe someday there will be a study about any linkage to FFA and tamoxifen.

Comment by Montymom on June 15, 2016 at 10:59pm

I am just catching on to this thread. I was diagnosed about 6 months ago. I too have recently switched from microbead facial wash to something more natural. Switching shampoos to sulfate free has also helped. I had shingles, but it was about 8 years ago (in my late 30s). I am also "allergic" to sunscreen which makes me crazy itchy. Those 3 are all commonalities I have!

Comment by Mel on June 15, 2016 at 1:12pm

Thank you, DeniseC. My mouth has been killing me for days but I also bit my cheek so I can't tell what's what. But notice some other small red bumps and now a weird hard bump on the roof of my mouth. Slept nine hours last night because I've been tired for days. When I get tired I notice the hairline looks worse. Trying to rest!!!!
Work stress plus too much bad news. May need to go on a "digital diet" to step away from all the bad news in our country and the world which I think adds a low level of stress. Let's all try to take good care of ourselves through diet, chemical free products, but also emotionally!

Comment by MJ on June 15, 2016 at 5:44am

I am not convinced of the sunscreen link. I only have an SPS of 15 that is in my foundation. I am not in the sun much overall so was only an occasional user of sunscreen on the body on vacation or long periods in the sun. I believe my trigger was a huge inflammatory response to a drug trial I was in, which caused a lot of pain anguish and stress. That followed by a huge amount of stress due to my mom's surgical complication and care. All during huge hormone fluctuations as I was raging into menopause due to stopping the breast cancer drug tamoxifen cold. Also, i would wonder if toxins from Facial chemical peels or retinol products or facial scrubs had something to do with it as well.
MJ

Comment by DeniseC on June 15, 2016 at 3:18am

mel

A quick response as I am (as ever) dashing out! I had oral lichen planus, which is what I was first diagnosed with. VERY sore mouth and upper throat, small blister-like spots that would pop up and disappear, and (this is where the name comes from) white striata that looks like lichen. However, it was the soreness that I had most - it was chronic. I couldn't use toothpaste or eat anything remotely spicy.

And it was that, that was diagnosed initially as shingles.

Denise

Comment by DW on June 14, 2016 at 11:55pm

I also had shingles - in my early thirties. It's looking like it may be a common thread. I am also devoid of hair on my legs (the only positive of this disease). Come to think of it, I didn't use sunscreen very often on my legs either. Religiously on my face, but not so frequently on my legs.

Comment by Mel on June 14, 2016 at 10:48pm

I was also diagnosed with shingles, but the doc did lab work to confirm so guessing it really was/is shingles? I still have mild symptoms years later. And this week I'm having mouth sores so hopefully it is nothing and passes quick... I will have to look up lichen planus.

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