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Comment by Sad in chicago on May 9, 2016 at 3:28pm

Thanks all, stay tuned..................!

Comment by DeniseC on May 8, 2016 at 5:45pm

Hi

Mine is the same as Liz's - real hair. And I, too, was shocked when I watched them attach the panel as it really showed me how much hair I had actually lost.it went so ery, very slowly, and my hair at the back of my forehead is thick, so I could (up to a point) disguise it, and deny its extent, even to myself.

I haven't yet had to have sideburns, but suspect that will come. My hair has gone from there, but not so much that the 'new' hair (the panel) cannot cover it.

Strangely, the sideburns missing really bother me. Not sure why. My hair is short, so they show more - and I was hyper aware before I had the Intralace system fitted. I have/had a long time habit of tucking my hair behind my ears, and of course, when there is no hair at the side, it shows.

Anyway - promise that once you have your new hair, you change your name to 'Happy in Chicago'!

Denise

Comment by Liz on May 8, 2016 at 4:44pm

Hi Sad in Chicago. My intralace is made from real hair. The intralace system I have is supposed to last for 2 years however I will need panels changed throughout that time. I have already had 3 panels changed as I wanted longer hair. I have also had the parting changed once x

Comment by Sad in chicago on May 8, 2016 at 1:31pm

Thanks all for your support.  I am trying to manage my expectations while waiting so long for the mold and piece that will hopefully become "me".  I can't even imagine having a hairline and sideburns!  12 weeks is a long time, but hopefully, worth the wait!  It was amazing how much more loss I have as I do my best not to look and keep combing everything forward.  When the size of my new hairline became apparent to me I freaked out again.  But, hope on the horizon!  (PS - who has cyberhair, synthetic, or real?  Which do you prefer?  Liz, yours sounds like cyber --- the stylist I met says it loves water!)

Comment by Celia on May 7, 2016 at 5:19pm

I am so glad to be able to post here again. Diagnosed in 2011 and started this site on Alopecia World in late that year. We now have 320 members. But no real solution. I think now the 'solution' is to stay healthy and find  as Sad in Chicago did -  a place that can create some cosmetic ways to hide the problem. Until, someone discovers a way to do hair transplant that works permanently.

Comment by DeniseC on May 7, 2016 at 4:21pm

Hi all - especially Sad in Chicago ...

I am soooo pleased you have started your journey towards 'new' hair. Last time I posted, directly to you, I ended my message with something about you hopefully not being 'Sad in Chicago' for much longer. Well, I truly hope that is now coming true!

And I hope your system is as good as my Intralace one - as Liz says, it makes such a difference. Yesterday, we had ten people here for a meal. I had been cooking and pottering around and needed a shower and hair wash. My daughter (grown up) arrived and told me I looked great and that my hair (system) had 'settled in'. And it has. It just looks normal now.

Obviously I wish I had my own hair - and like everyone says, FFA is a pain in the proverbials. But, this is a solution I can live with.

And Celia, I too, am taking part in the Guy's research. Anything to help get a cure - or at least an explanation.

Denise

Comment by Liz on May 7, 2016 at 4:12pm

Hi Celia. I don't take any medication. I had an intralace system fitted back in December and it has allowed me to forget, to an extent, my FFA. It took a little bit of getting used to because it takes a fair bit of looking after but  I get up in the morning, spray some moisture spray in it, brush it and go out knowing that nobody has a clue that I have alopecia. The wind no longer bothers me either. Next week I am off to Guys hospital with my mum to take part in their FFA research xx

Comment by Celia on May 7, 2016 at 3:56pm

Liz do you take meds any more ? I haven't been able to access this site  for a while and in a way I have been able to go into denial. That way you don't feel the pain that newcomers feel. On the other hand you can't access the good info.

Comment by Celia on May 7, 2016 at 3:49pm

Liz that sounds good. You have contributed to this site for a long time. It would be great if you were able to come to  a get together. This awful problem seems insurmountable and we don't know why it happens

.

Comment by Liz on May 7, 2016 at 2:55pm

Hi Sad in Chicago. I have the natural hairline in my intralace system and I'm really impressed with it. You'd never know that it wasn't my own hairline x

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