Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

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Comment by Celia on May 7, 2016 at 2:24am

Sounds great ! Well done !

Comment by Sad in chicago on May 6, 2016 at 11:07pm
Hello all. I had a consultation at the world hair institute today and I am guardedly encouraged. Their interlace system also has a frontal and sideburns replacement option so you have a hairline again. They took a mold of my head so it can be custom fitted. Takes 12 weeks to make and they use cyber hair for the piece. Stay tuned!
Comment by Celia on May 2, 2016 at 12:47pm

Hello ladies, having just got back on this site I am hoping I haven't lost contact again since I cannot view any posts after Jen's on April 25. Best wishes, Celia.

Comment by Jen on April 25, 2016 at 10:12am

Hi Celia,

Thank you for starting this for starting this online group. It has been very informative for me. reading these stories has made me feel less alone and more calm.

Comment by Meme on April 25, 2016 at 4:10am

Thank you Celia, I found the get together a real help last time so would definitely like to come again. 

Comment by Celia on April 24, 2016 at 5:07pm

Hi Meme it was good to meet with you albeit ages ago over in my home. So sorry to hear that your air loss is continuing I hope to have another get together soon and would love you to be here..

Comment by Meme on April 24, 2016 at 1:23pm

Great to hear from you Celia. I to havent posted for a while. My hair loss has got worse and is noticeable and  I am undecided as to whether to have a hair piece or go down the wig route. But like you I am just trying to get on with life and enjoy it. Hope you are well. 

Comment by Celia on April 23, 2016 at 6:18pm

Thank you, Liz. I've been able to see how you are, but unable to comment until today when I was given a new password. What is noticeable is how many younger women are experiencing FFA.

Comment by Celia on April 23, 2016 at 6:13pm

I haven't kept up for a very long time, but I hope there are some people out there who may remember me ! I haven't taken any medication for at least a year. I didn't want to trigger anything else !

I was diagnosed in 2011 at a . time after an illness that meant that I took serious antibiotics.

I've lost hair above my ears and about3cm from my hairline. I have my eyebrows tattooed thanks to Deb who introduced me to Belinda Hayley in Chertsey.- she does my brows every 18 months.

I see Dr Ali at Charing Cross Hospital periodically.

All stressful but try to enjoy life anyway.

Comment by Liz on April 23, 2016 at 6:08pm
Hi Celia. I hope that you are well. It's lovely to see that the forum that you started is getting lots of use. You should be proud. You've created a lovely, supportive environment for people to share thier stories,worries and successes xx
 

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