Frontal Fibrosing Alopecia

Information

Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Comment Wall

Comment

You need to be a member of Frontal Fibrosing Alopecia to add comments!

Comment by MJ on November 15, 2015 at 7:21pm
Marilyn,
Where did you get your topper made? I live in Livonia currently so I am near you.
MJ
Comment by Lauren on November 15, 2015 at 2:20pm
Steph, thanks for your comment back. It is always on my mind too to the point of obsession. It started before I was diagnosed and after diagnosis was able to put it out of my mind for a bit with the thought that there isn't anything I can really do to change it so just accept it. But I'm back to obsessing thinking it looks like I've lost a bit more right around the biopsy area. I think being single is what makes me worry more. It's nice to hear Steph, that your partner is supportive. My family says it's not noticeable but I constantly worry that it will get worse and then what if i look worse and can't find someone, yada yada. I know it's stupid, and I shouldn't worry. Any suggestions or advice from anyone?
Comment by Marilyn on November 15, 2015 at 11:42am

I'm responding to Brenda fro IL--I too have tried to make peace and accept this condition for what it is...I just invested in a topper that was made for me and still getting used to the idea of wearing it but even my son and husband didn't initially notice....they thought I had just had a blow out!    I too have tried injections, different meds. foam-and finally decided it was time to smile and move forward.   (Not always easy but necessary for my sanity)  Thanks1

Comment by ElizabethRYT on November 15, 2015 at 10:52am

My dermatologist tells me that Latisse will grow here on 'anything'.....but that is not always the case, from what I have read here.  Some cannot use it at all because it is very irritating to the skin, or can be.  It is also expensive.  However, it is worth a shot I think for anyone who wants to try it for eyebrows or lashes .

Comment by Anne Louise on November 14, 2015 at 9:52pm
I bought Latisse a while ago to try to save/regrow my eyebrows. I only had a few left. The hairs that were there got longer and a little thicker but I didn't see any new growth. I recently resumed for my eyelashes because they seem to be thinning and I think it is helping. I throw the excess over my bare eyebrows (now tattooed) for the heck of it and have seen nothing. This has been since September.
Comment by sallylwess on November 14, 2015 at 8:52pm

I already have lost my eyebrows.  Do you think the Latisse will work to bring them back?

Comment by Maddy, California, U.S. on November 14, 2015 at 2:30pm

Most insurance plans in the U.S. (not sure where you are located) won't cover it unless you are diagnosed with glaucoma (the original intent of this medicine). I always ask my derm for a 1 year prescription (12 bottles) and then I order them through a Canadian pharmacy in 3 bottle increments. Three bottles cost a little less than $60...which lasts me for at least 3 months. This is the pharmacy I use and they have always been reliable.  http://www.bigmountaindrugs.com/   Also, I order Bimatoprost [Generic version of Lumigan] .03% 3 ml. bottles (Lumigan is the same as Latisse here in the US). 

Comment by ElizabethRYT on November 14, 2015 at 2:13pm

Thank you, Maddy : )  That makes me feel better again gaining hair back...Latisse is so expensive, so I am just curious if it were written as a prescription here, would my insurance cover it ?  I am writing down the generic name to help.  Much appreciated!

Comment by Maddy, California, U.S. on November 14, 2015 at 12:54pm

I have been using Latisse on my eyebrows and eyelashes for years (basically since I first started noticing loss) and it works for me. I get a prescription from my dermatologist and order it from Canada (generic Bimatoprost) and I am almost positive that this has saved my eyebrows.

Comment by ElizabethRYT on November 14, 2015 at 9:14am

Hello all-  I am curious about the use of Latisse to grow eyebrows back. After 4 weeks of topical steroid spray, this is the recommendation of my dermatologist to get hair back.  Has anyone had any success with this product?

 

Members (602)

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service