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Comment by Sad in chicago on August 12, 2015 at 11:22pm

KarenGinny -- I think the band is very effective.  Happy it works for you.  I have shorter hair so between my extreme loss and nothing to stick out from under the headband it looks bad.

Lo -- I am not on any medication,  I tried Rogaine and propecia to no avail.  My derm mentioned the anti malaria pill but I decided not to do that to myself, especially since she said there has never really been a cure  I am a breast cancer survivor (20 years now, got it when I was very young, 43) and am not prone to putting wierd things in my body.  

The loss, although I have not really mesaured it, is a good 2-2.5 inches back.  It goes back from my ears as well.  I have very little if any eyebrows left.  I have been able to camoflauge with makeup and brow stuff as well wear my hairpieces, one or the other every day.  Sometimes when walking or excercising I just wear a baseball hat.  

I really do not think anyone other than the few I have told knows I have this condition which is the way I like it, as my hairpieces are pretty good.  I am not ready to really share and hate that I am dependent and sometimes feel like I look funny even with the pieces.  But I do my best to continue to look like myself and  so far it seems to be working.  The difference between having the hairpiece on or not is astonishing to me.  I particularly cannot get over my forehead being so white!  I always wore bangs too, so I guess that didn't help!  

anyway, until I am an old, old lady I plan on trying to look the way I do today.  Not sure how much longer I can carry it off, as sometimes the clips come loose on the pieces as the hair beneath is so thin.  I am hanging in there tho.  

I am certain menopause had a lot to do with this too.  Also I was very stressed over something when it started, but the derm says that does not really add into the mix.  Oh well, whatever, it is what it is.  Good news:  no face fuzz, moustache, pulling hairs from my chin, shaving legs, hairy arms and smooth skin.  

Comment by KarenGinny - Iowa, US on August 12, 2015 at 8:42pm

My forehead is very much lighter where the hair loss is, also at the temples and in front of my ears. The headbands do cover my temples but not the area right in front of my ears, but I wear glasses so I think it hides it fairly well. At least no one has asked me about it anyway. I do have a thin strip of fine hairs at the very front and sides of my former hairline and then it goes bare after that - Like a line of hair that still grows but bare behind that. I started shaving the very front on my forehead so at least I don't have this weird strip of hair. My eyebrows have thinned but are mostly still intact. I've been on methotrexate to help with inflammation and my scalp is a little ichy sometimes but not sore.

Comment by KarenGinny - Iowa, US on August 12, 2015 at 8:25pm

Here's a pic of me on vacation at Carlsbad Caverns, New Mexico, wearing a headband across the front with my hair down.

Comment by Lo on August 12, 2015 at 2:47pm

Sad in Chicago - are you taking any medications/treatments?  I recall prior posts, but cannot remember who said what.  How much have you lost - and is it mostly from front/top hairline - or more loss at temples and down by the ears?  Just curious...

Karen - I would love to see a recent pic.  I've seen your posts in the past - and you always have a positive comment!  Thank you for that - and send that picture!  They are easy to upload onto this site. 

Comment by Sad in chicago on August 12, 2015 at 2:30pm

Lo -- take the hairpiece to a good hairdresser or wig maker and they will "style" it for you so it blends with your natural hair.  That is the point.  Real hair should be easier to work with.  Just tell them to be careful and go slowly cuz if they cut too much no growing back!  With the money you spent, you should be happier.  I have a real hair one for day time, work, and most occasions, but recently bought a similiar synthetic for exercise, pool, walking, etc. My hairdresser cut them the say way so they don't look like I have two different styles.  Yes expensive and yes a pain in the butt, but I have NO CHOICE.  Being totally bald might ultimately be easier than camoflauge.  Further, the FFA is so unsightly with the way the hairloss exhibits itself all back from the face.  

I tried headbands for a while but the loss is too great to work with it in the front.  Also my forehead is so white compared to the rest of my facial skin that I look kind of like a freak!

Comment by KarenGinny - Iowa, US on August 12, 2015 at 2:18pm

I wear headbands sometimes. I have a lot of hair loss- bald patches at temples, all over the front that goes back about 2 inches. I've grown my hair longer and pull my bangs forward which hides most of it, but they are thin and I know you can see through them to the bald areas. So I find headbands one way to cover it and they stay on pretty well. I've bought many different kinds and some are too tight and give me a headache,and some too loose, but some have been good. The rest of my hair is fairly thick - although not as thick as it used to be, and curly. I wear the headbands sometimes with my bangs under them and sticking out the front - but they sometimes slip, or wear them against my forehead with my bangs coming over the front and sides. It doesn't cover my temples but it looks better than going without and having the wind blowing my hair all over. I will wear a baseball type hat too, but then again, those can blow off. I've never tried a wig or topper- they sound very uncomfortable.  I will try to post a picture if I can.

Comment by sallylwess on August 11, 2015 at 10:37pm

I have not found headbands to be very successful.  I did at first about a year ago, but then I lost hair at the back of the head near the crown and the headband did not cover that.  I also can't keep them in place because I have lost hair at the back of the head.  I also spent an arm and a leg for a human hair topper that I don't like because it doesn't match my hair well.  I've taken two wigs and cut them down to be a topper. I can them my wig hacks.  I sewed in clips.  They are adequate and work better than the human hair topper.

Comment by Lo on August 11, 2015 at 10:33pm

Hey April. I do not wear head bands unless I swim. The idea is (I guess)to either pull some bangs forewars and have them stick out of the front of the headband ... Which is what I do. It helps also that I generally always have my 2 side pieces taped in above my ears so that there is hair in that area (otherwise it would look totally bald above my ears s d no hair to come out of the sides of headband. But it's doable. As far as the hair piece, I was charged sn arm and s leg when first diagnosed in december... And got s hairpiece that is lovely but just not sure j will ever wear it. It is human hair. It sits on top of my head and there are clips to secure it. It does have bangs so I just clip it to the hair at my bangs (whatever you may have left) and skip it along the sides and back. It stays put. So they do work... Just not my favorite.

Comment by April on August 11, 2015 at 9:31pm

Ladies who wear headbands: do you feel you can completely hide your hairloss with the headbands? Also, I keep trying to figure out how a hairpiece can cover the hairline? I know some use hairpieces but I'm just having trouble picturing it.

Comment by April on August 11, 2015 at 9:28pm

Little sad eyes,it looks like you still have your widows peak. That might be a good sign that it's not FFA! I lost my widows peak area first. Also, sounds like you still have some peach fuzz on the bare areas. Mine are totally smooth and shiny. Anyhow, keep us posted on what you find out. Sounds like the Rogaine is working: )

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