Comment

Comment by Rachel218 on August 11, 2015 at 8:20pm

LSE I definitely notice more burning and hair loss at the time of my cycle.

Comment by NatalieW on August 11, 2015 at 7:20pm

My hair loss is similar to what the others have described. I am only 39 and am pre-menopausal. I don't notice any difference with hair loss in my cycle. I lost my widow's peak first as well as most of my eyebrows, then loss above my ears and temples. Still very slow progression for which I am thankful. I also get itchy, tender and red on my forehead with spots on the crown and back of my hairline. Regaine has helped to thicken up around my frontal hairloss and eyebrows.

I am pragmatic about this as have 2 friends fighting cancer and although their hair may grow back after chemo, there is a chance that they may ultimately lose the bigger battle. FFA is awful but it will not kill me and I hope I can teach my daughter through this that appearance is not everything, and to love yourself no matter what.

Comment by LoriO on August 11, 2015 at 4:49pm

LSE your experience is different from mine also.  I follow the pattern of others described here almost exactly.  Bald spots in front of my ears, and generally recession of about 1/2 inch all along the front of my hairline.  No loss anywhere else that I can tell, although there is a lot of hair in my combs and brushes so maybe I am losing it all over. No loss in the back, no hair loss anywhere else except in my eyebrows, which my Derm thinks is just normal age related.  (I differ in opinion on that.)  It's often itchy, and often I get bumps all over my head that itch, which I thought might be LPP. 

From what I've read, there is no way to regrow hair with FFA, so if you have little hairs coming in from Rogain, you probably do not have a scarring alopecia. Which is a good thing!

Comment by Annie on August 11, 2015 at 11:16am

Dragon&Fox, my forehead also itches sometimes.  Right now it's tender & feels a little swollen.  I rarely wear headbands or hats because they make my head itchy & painful.  I also hate windy days because the wind blowing through my hair is extremely painful & leaves my scalp tender.  It makes me wonder if I'll be able to tolerate a hair piece when the time comes to get one.  It's interesting that my doctor seems surprised every time I mention the pain associated with this disease because my scalp doesn't look that irritated.  It has gotten better since I've been taking Plaquenil, but windy days still make me cringe.

LSE, your hair loss is different from mine as well.  The first thing I noticed was a smooth patch where my widow's peak used to be and the loss of the short baby-fine hairs around the sides of my face. 

Comment by Jen on August 10, 2015 at 11:27pm

LSE,

Your hair loss seems different from mine. I have a few eyebrow hairs. about 2 inches of hair is lost above and behind my ears. About 1 inch is lost at the forehead and temples and on the right side back of my neck there is a 2 inch bald spot.  I have significant overall loss but at 60 years old, I guess that is not uncommon.  I am hoping that you do not have FFA. Your hairline at the sides look fairly intact. I am not sure how much you have lost at the forehead but it does seem like more than the sides. I see the spot at the back which does look like mine.  You have good eyebrows.

Comment by DragonandFox on August 10, 2015 at 11:23pm

I have itchy forehead too.  I figured it was my bangs and not totally associated, but now I see a lot of people suffering the same issue.  Also headbands are torture and I love them!  They usually cause more itching and they exacerbate the tenderness.  it's frustrating.

Comment by Mike'sDeb on August 10, 2015 at 10:36pm

*meant to say have not lost any hair elsewhere

Comment by Mike'sDeb on August 10, 2015 at 10:34pm

LSE, My hair loss pattern is similar to Lo...bald, smooth and pale skin in front and above both ears and at temples, as well as front of hairline (about 1-1/2 inches back)I also have noticeably thinned out brows. Hair loss is worse on left side. I have not any hair elsewhere. To me your hairline does not resemble mine. I am surprised it is taking so long for your biopsy to come back, but I agree with Lo...stay positive!

Comment by Lo on August 10, 2015 at 10:10pm

LSE, I think everyone has a different pattern of loss with FFA... But most experience eyebrow loss... Either partial or full. I have compete loss (bald and smooth) above both ears and at temples. The forehead is starting to recede. I have no hair on my arms or legs, and have full eyebrow loss. Looking at your photos, it seems the area that you shaved has grown back in nicely... That is s good sign. I pray your doc gives you s definitive diagnosis. I'm not s doctor... But I can tell you that this looks very little (if at all) like the loss that I have. So maybe it isn't FFA! Stay positive.

Comment by LittleSadEyes on August 10, 2015 at 9:34pm

And finally some close ups

Sorry about my face...

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