Frontal Fibrosing Alopecia

Information

Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

Comment Wall

Comment

You need to be a member of Frontal Fibrosing Alopecia to add comments!

Comment by Maddy, California, U.S. on August 6, 2015 at 11:06am

LSE, I have been using Rogaine for about two years now and it has definitely helped my eyebrows to regrow and it has thickened up the existing hair around my hairline. I don't know if it works for everyone, but it has worked for me. 

Comment by LittleSadEyes on August 5, 2015 at 9:03am

Anyone started using rogaine and noticed it made brows and hairline worse? Mine is receding day by day. 

Comment by April on July 22, 2015 at 8:57pm
I thought this post and all of the comments were really uplifting : ) https://www.facebook.com/humansofnewyork/posts/1032604000147033:0
Comment by Mike'sDeb on July 22, 2015 at 9:17am
I had an itchy front half of my scalp and red bumps in the front of my hairline(which I thought were from sweating while exercising). This was all before I noticed any hair loss. The hairloss itself was gradual and due to my hairstyle I did not notice it for a while. I actually thought the itching was from hair products. It has been a year now since my diagnosis and these issues stopped around the same time. My initial reason to see the dermatologist was to ask if there was something I could do for my thinning eyebrows. Dermatologist also measured my hairloss with pictures at each visit and so no change over the past year.
Comment by sadandunsure on July 21, 2015 at 11:59pm
What are you guys using to measure inflammation? My biopsy was taken a little further back than where my hairloss is at and said there was inflammation (also early androgenic alopecia) but my scalp wasn't red, itchy, sore, nor did I have bumps...I have none of those symptoms, but there is still inflammation under the skin (although there are a lot of articles saying inflammation is found iN AGA so maybe that's what it's related to). In any case, when You guys say inflammation, do you actuaLly have little bumps or something? Or tenderness/itching?
Comment by Mike'sDeb on July 21, 2015 at 6:41pm
Thank you both! By clean eating I mean no refined processed food. The nutritionist told me the majority of what you eat should either grow from the ground or have a mother. I occasionally indulge in my weakness for pizza but otherwise steer clear of breads, pastas etc. I found the more good things I ate and the better I felt the less I craved the "bad" stuff. I drink a lot of water and stay away from sugar and the unhealthy fats as well. I do have olive oil, avocados and other healthy fats. I eat pretty much the Mediterranean type diet. I walk 3-6 miles most days and I do a yoga class and a cardio class each once a week. It's all been positive changes and it seems to be working and I feel good about living a healthier lifestyle. As far as weight, I have always watched but I probably am at at the lower end of my range which is another positive thing! I don't feel hungry or deprived (I allow the occasional indulgence when it's worth it) so it's hard not to think these changes have been beneficial in the halting of FFA.
Comment by NatalieW on July 21, 2015 at 6:04pm

Mike'sDeb - that is wonderful news! and certainly gives us some hope that eating can affect this condition. I certainly notice that gluten affects the level of inflammation I have in the active area. Good luck and I sincerely hope that the "burn out" is permanent for you

Comment by Sad in chicago on July 21, 2015 at 5:32pm

Mike'sDeb:  What are you considering clean eating?  No carbs at all, or just no refined, processed foods.  Have you lost weight?  Do you exercise?  Thanks.

Comment by LittleSadEyes on July 21, 2015 at 8:39am
My recession has sped up hugely recently. My widows peak is going.eyebrows sparser by the day. Scalp embarrassingly visible. I don't understand why its sped up like this. If I look really really close under light there are the tiniest smallest baby vellus hairs on the recession kind of like you get all over your body but dont notice. I'm not really coping.
Comment by Mike'sDeb on July 16, 2015 at 10:55pm
*that should say derm visit update :)
 

Members (599)

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2026   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service