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Comment by Alice on December 10, 2014 at 2:42pm

I had problems with dry eyes, and falling out eyelashes, for years before I noticed any hairloss on my head.  Two eye doctors commented that the follicles for my lashes looked inflamed. Restasis, which is cyclosprine drops, has helped the dryness. I also don't notice my lashes falling out as much as they did, either. I figure all the inflammation is related but I'm not sure how much is autoimmune in nature.

Comment by cubbieblue on December 10, 2014 at 2:41pm

Hello all - I was diagnosed with FFA in April 2014 and also noticed this year that I sometimes have a hard time opening my eyes, like my lashes are sticking together!  I just figured dry eyes and never put it together with the FFA.  Interesting.

Also I was diagnosed with breast cancer October 2014 (yeah, its been one of those years).  Both my dermatologist and oncologist see no connection between FFA and the BC, but I was wondering if anyone had any information to share on that subject.

Comment by Maddy, California, U.S. on December 10, 2014 at 12:37pm

I have also had a problem with dry eyes and had to stop wearing contacts several years ago. I'm not sure which came first either, the FFA or the dry eyes. Interesting!

Comment by Marilyn on December 10, 2014 at 11:25am

ok, I meant to say FFA-not FAA-I think that means I want to travel-lol!!

Comment by Annie on December 10, 2014 at 10:41am

I also have a problem with dry eyes.  I never really thought about it until I mentioned to my eye doctor that I couldn't sleep in my 30-day contacts because they become uncomfortable after about 14 hours of wear.  He said it was due to dry eyes.  I honestly don't know which came first - the dry eyes or the ffa, but I definitely had problems with the dry eyes before taking Plaquenil. 

Comment by Marilyn on December 10, 2014 at 10:16am

Thanks for all the great feedback-I have a bit of infection under upper and lower lids of eyes-have drops now for 3 weeks-Dr. said it wasn't allergy related and he didn't believe any connection to FAA-not sure how much he knows about FAA but with drops, warm compresses and tears for dryness-he said all should resolve.  I already feel a bit less burn and itch after 3 application of eye drops -tobradex.  I have thought about eyebrow tattoos but haven't found a great artist here where I live.  Someone posted, a woman in Boston-wow, those brows looked great.  Any one from Mich. let me know if you have found a great tattoo artist for brows.   Chris C I  need to get info. on Carf meetings or group in Chicago-at least you are closer.  It's only a 30 -40 min. plane ride and I believe 3 1/2 hr. drive-depending on traffic!!  Again, thanks for the responses-I don't feel so alone in this process that most say "won't kill me"-and yes indeed I know this and am grateful but......you all understand.

Comment by Sas Holland on December 10, 2014 at 8:51am

now that you mention it, I was diagnosed with dry eyes also about the same time my eyebrows were falling out. I had to stop wearing contact lenses then and I wear glasses ever since. I don't have to use eye drops, because I only had trouble with it when wearing contact lenses.

Comment by Anne Louise on December 10, 2014 at 8:46am

I was diagnosed with dry eye during the time my eyebrows were falling out. I've always wondered if there was any correlation. Now I use eye drops, especially in the morning, in addition to all my other regimens!

Comment by ChrisC. Chicago, IL on December 10, 2014 at 7:18am

Hi Marilyn, welcome to the group! I wanted to comment on the itchy eyes, since that has been a symptom that has just started for me as well—some days worse than others. I was diagnosed in 2011 and I am sure I had it for a few years before that. I had never had discomfort—the itching/burning scalp thing until this summer. My doc, who lead the CARF conference here in Chicago, increased my Plaquenil dose to 400mg twice a day! The burning has really subsided although there is still loss.

I've been wondering if the dry eye was due to the increased Plaquenil dosage, or allergies, or not drinking enough water, or the dry winter air. . .  anyway I will be going to an ophthamologist after January 1. I would be interested to hear any follow up on this.

Thanks for sharing.

Comment by Sas Holland on December 10, 2014 at 6:30am

I totally agree with C about the eyebrow tattooing. I had mine done again (4th time in 10 years,  since I don't have any eyebrow hair left) 10 days ago and i am so happy with them. I just uploaded a picture of them in my photo album.

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