Comment

Comment by MJ on December 11, 2014 at 6:12am

Marilyn, have you attended the CARF support group in Detroit? I got only one communication from them in the past year about a meeting but I was reluctant to go down to Henry Ford Hospital by myself.

Comment by MJ on December 11, 2014 at 6:06am

Cubbieblue, i was in a hurry yesterday and meant to tell you that i would be happy to help you with any breast cancer questions or support if you would like to email me. Believe me when I say, there will come a day when BC will not rule your world..
MJ

Comment by Classical Anne in NC mountains on December 10, 2014 at 11:30pm

My goodness, Ladies!  So many dry eyes!  I have struggled with dry eyes, stuck together and burning in the morning, burning in the evening to the point I cannot tolerate a ceiling fan, burning so much late at night that I can hardly read or watch TV, and occasionally [but not often] itching like mad!  Although it has been worse in the last couple years, I have experienced it for many years.  I honestly never thought to consider it a symptom of anything else.  But with the number of autoimmune diseases I now have, perhaps there is a connection to that aspect of it.

I have never taken Plaquenil, so that's definitely not it in my case.  But I have also always had extremely dry hair, dry skin, dry mouth, dry nostrils, my husband even says I have dry wit.  I have used eyedrops on and off for a couple decades, and I gave up wearing contacts close to 30 years ago.  Conclusion: in my case dryness is not a symptom or result of anything to do with FFA, but it certainly could have been an insidious catalyst.

Cubbie Blue, I am so very sorry to hear of your breast cancer diagnosis.  I know you must have a fine oncologist in Chicago, and hope that your therapy is entirely successful, and not too uncomfortable!

Comment by Marilyn on December 10, 2014 at 10:23pm

Hi MJ-I'm in West Bloomfield.

Comment by MJ on December 10, 2014 at 8:22pm

Hi all, I have had dry eyes, though not severe, over the years. Cubbieblue, I am five years out from breast cancer. The thing that started my downward spiral was tamoxifen I took for 3 years and 2 months after my surgery. I could write a book on it!

Marilyn, I am in Michigan too, but don't need eyebrows yet. They are holding there own with the rogaine and elidel. What part of Mich are you from. I am in Livonia.
MJ

Comment by Alice on December 10, 2014 at 2:42pm

I had problems with dry eyes, and falling out eyelashes, for years before I noticed any hairloss on my head.  Two eye doctors commented that the follicles for my lashes looked inflamed. Restasis, which is cyclosprine drops, has helped the dryness. I also don't notice my lashes falling out as much as they did, either. I figure all the inflammation is related but I'm not sure how much is autoimmune in nature.

Comment by cubbieblue on December 10, 2014 at 2:41pm

Hello all - I was diagnosed with FFA in April 2014 and also noticed this year that I sometimes have a hard time opening my eyes, like my lashes are sticking together!  I just figured dry eyes and never put it together with the FFA.  Interesting.

Also I was diagnosed with breast cancer October 2014 (yeah, its been one of those years).  Both my dermatologist and oncologist see no connection between FFA and the BC, but I was wondering if anyone had any information to share on that subject.

Comment by Maddy, California, U.S. on December 10, 2014 at 12:37pm

I have also had a problem with dry eyes and had to stop wearing contacts several years ago. I'm not sure which came first either, the FFA or the dry eyes. Interesting!

Comment by Marilyn on December 10, 2014 at 11:25am

ok, I meant to say FFA-not FAA-I think that means I want to travel-lol!!

Comment by Annie on December 10, 2014 at 10:41am

I also have a problem with dry eyes.  I never really thought about it until I mentioned to my eye doctor that I couldn't sleep in my 30-day contacts because they become uncomfortable after about 14 hours of wear.  He said it was due to dry eyes.  I honestly don't know which came first - the dry eyes or the ffa, but I definitely had problems with the dry eyes before taking Plaquenil. 

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