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Comment by MJ on November 13, 2014 at 5:36pm

Jen,
It is hard to say. I don't think I have had any loss while on it but my hair recession happens slowly with no outward symptoms. I have also been using it on my eyebrows. They have stayed the same. Have not really noticed any new growth but definitely no more thinning. I use the elidel over the rogaine nightly. I use the clobetasol every other morning.

Sas, several of us follow that kind of diet, although now that I am working full time, i have been breaking the rules more than I wish. I almost wonder if it is the diet and not the meds that have done the most good....

Comment by Donelle on November 13, 2014 at 5:10pm

Sas Holland the hair stemcell transplant sounds fantastic.  Please do keep us updated as to your progress.  This is the first I have heard of it.  Do you have to wait until the disease is in remission before the transplant?

I have been following a diet such as you describe.  I feel much better on it, so in that sense it is working, but not sure whether any difference in hair loss.  But the psychological benefit is worth it.

Comment by Anne Louise on November 13, 2014 at 4:21pm

Linda, I haven't heard of anyone with both FFA and AA. My understanding is that eyebrow and body hair loss are a feature of FFA. My eyebrows are completely gone as well as my arms and now my leg hair is becoming sparse, especially thighs. I am curious as to any explanations your derm may have given you.

Comment by Jules UK on November 13, 2014 at 2:40pm

Had a call back from my lovely GP and I can't take St Johns Wort whilst taking Plaquenil. Time to fall back on yoga.
Linda, I found focussing on diet and exercise was a good distraction and helped me feel I was doing something positive for myself in dealing with FFA. Keep in touch with the forum. That also helps, a lot!
X

Comment by Sas Holland on November 13, 2014 at 2:17pm

Hi Annie, thanks for letting me know,  that's already a quick result, because I understand it normally takes a few more months to  notice any difference

Comment by Annie on November 13, 2014 at 1:38pm

Sas Holland, I have been avoiding gluten, dairy, eggs, peanuts, soy, sugar (& artificial sweeteners), & corn for about 6 weeks.  I am also trying to eat lots of veggies & fruits & very little meat.  The area of my scalp that has been affected by the ffa is definitely less red, so I think the change in diet is helping.  As an added bonus, I've also lost weight & my joints are less achy. 

Comment by Jules UK on November 13, 2014 at 11:50am

Thanks Debs. How do you find these things? I've requested a call back from my GP about the St Johns Wort.

Comment by DebFromCA on November 13, 2014 at 11:47am

There's a great autoimmune summit going on on-line right now...and it's free.  Each day there are a number of discussions with leading experts in the functional medicine world.  The videos are only available for 24 hours, new videos go on-line each day.  If you're interested you can check it out here: http://autoimmunesummit.com/  

Comment by Jules UK on November 13, 2014 at 11:41am

The stem cell transplant sounds exciting and hopeful. Goodness knows we need some light on the horizon.
I'm in the process of moving house and since stress seriously affects my FFA, I bought some St John's Wort. However, in the leaflet it says not to take with immunosuppressant drugs. It doesn't name hydroxchloroquine but I don't know whether to risk it. Any thoughts? X

Comment by Jen S. on November 13, 2014 at 9:57am

MJ - how is the Ellidel working out?

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