www.alopeciaworld.com
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Comment
Really interesting to hear about your consultation with Dr Ali, it sounds very promising. I would be very interested to hear about the treatment plan she proposes too.
Thank you so much C for the update. Dr. Ali sounds great! Did you need a referral from your GP to see her? Did you call the Charing Cross hospital dermatology department to make an appointment?
Thanks again! Catherine x
Dr Iaisha Ali is the derm's full name and she leads the clinical team. So very approachable and knowledgeable.
Hello all. I have just returned from Charing X hosp where I saw Dr Ali,(Consultant Dermatologist) a very pleasant young lady who has expertise in alopecia. She took 3 new biopsies one from the front, the crown and the back, the aim being to see what if any differenced there is in any alopecia activity - I go back in 2 weeks time for the results and then she will start me on a more 'tailored' regime. I had some blood taken too for the full screening inc. hormone levels - never been offered that before. I don't like meds but she has convinced me that she will try to make a plan that may just halt the FFA - she has had patients for whom the FFA has become inactive after some 18 months of treatment. She had not seen such an effect as I have following steroid injections - as I've said in the past I have a 'trench' at my hairline because of these shots - never again - but I know there are ladies who have felt these to be successful. Fingers are crossed once again, not having been seen by a derm for a year. Charing Cross hosp was amazingly clean and the staff were soooo efficient - all ran like clockwork, my apt was about 15 mins late but I had a 50 min consultation.
Hello All
In the last couple of weeks I've been diagnosed with FFA, however I've probably had this condition for the last 3 years, for example my eyebrow hair fell out first followed by a red sore patch appearing on my forehead which spread down the side of my hair line, resulting in my hair receding around the front and sides. The specialist I saw injected my scalp with steroids and I’m to re-visit him again in January. I wasn’t expecting the diagnosis I got, as you can imagine I was thinking I’ll go along to see the specialist, he’ll tell me I’ve got a skin condition give me some cream and my hair will be back in a few months, when he didn’t I was shocked and upset and didn’t really ask the questions I wanted to, all I could remember from the consultation was the words “It’s a rare condition and your hair will not grow back and the aim is now to slow or prevent any further hair loss”. I’m 47 and not yet showing any signs of the menopause and except for low Iron which is currently being restored with Ferrous Sulphate tablets all other blood test results came out fine, therefore I am at a loss as to how I’ve developed this condition. I don’t have a perfect diet but I don’t eat junk food either. Is it really true that FFA sufferers will never get back the hair they have lost? I’m open to any advice that will inject some hope to get me started on how to tackle this condition. Thank you for reading and your advice in advance.
Hi Sas. I have often wondered if it hereditary and it may well be. However we also spend many years living in the same house being exposed to the same toxins in our make up, cleaning products etc. We both used make up from the same company whose ingredients have since been banned. We both used home perms....So it could be hereditary but maybe not x
Hi Liz, So you and your mother both have it, just as Rebecca. I had hoped it wasn't hereditary, but maybe it is then?
and thanks C, found the page, the fact sheet is not there but I will ask Debs for it
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
© 2024 Created by Alopecia World. Powered by
You need to be a member of Frontal Fibrosing Alopecia to add comments!