Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by MJ on October 29, 2014 at 7:26pm
Liz, I am curious as to what brand of makeup you had been using?
MJ
Comment by Liz on October 29, 2014 at 1:25pm

Hi Sas. I have often wondered if it hereditary and it may well be. However we also spend many years living in the same house being exposed to the same toxins in our make up, cleaning products etc. We both used make up from the same company whose ingredients have since been banned. We both used home perms....So it could be hereditary but maybe not x

Comment by Sas Holland on October 29, 2014 at 1:13pm

Hi Liz, So you and your mother both have it, just as Rebecca. I had hoped it wasn't hereditary, but maybe it is then?

and thanks C, found  the page, the fact sheet is not there but I will ask Debs for it

Comment by Jules UK on October 29, 2014 at 1:08pm

UK SURVEY

Hi UK ladies, please remember to fill out the hairloss survey if you haven't already.  It closes on Friday.

http://www.alopeciaonline.org.uk/hairloss_PSP.asp

Thanks for your support! x

Comment by jess on October 29, 2014 at 12:56pm
Does anyone know if you can get hairpieces like the bespoke ones mentioned on here in the United States?
Comment by Liz on October 29, 2014 at 12:53pm

Hi Sas. I have had FFA for at least the past 3 years and my mum has it too for the past 6-7 years. She is 74, I am 43 x

Comment by Celia on October 29, 2014 at 12:17pm

Sas - if you look above on this page on the discussion forum you will see View All at the bottom - click onto this and go to page 4 - you will see the sheet compiled by Debs there.

Comment by Sas Holland on October 29, 2014 at 9:44am

hello C, I cannot find this info sheet from Debs, where do I have to look?

Comment by Sas Holland on October 29, 2014 at 9:39am

Haha, hello C, no problem and yes I am very grateful for alm the good advices here. Ik have yet  not seen the sheet you mention from Debs, but I am going to look it up!

Comment by Celia on October 29, 2014 at 7:10am

Hello again SAS - silly me - I should have read more about you before writing my last post !

 

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