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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Hi All, I just wanted to update you on my 6-month appointment with my derm last Friday. After taking plaquenil for 15 months, my doctor said he is very pleased with my progress. My ffa has not burned out, but it has stabilized. He could not see any evidence that it has spread since my last visit. I still have some scaling in a couple stubborn spots, but very little redness. I am to remain on the plaquenil / topical steroid program and see him again in 6 months unless I experience a flareup.
Pam, please go see your doctor [not necessarily your derm] ! That kind of itching, including palms of hands sounds like a bad allergic reaction. I've been there too often, and it's not a happy place. Something you are taking/doing is not right for your system. I hope you find relief soon. Don't try to ignore the symptoms -- you may end up needing adrenaline injections to help flush it out of your system. Best wishes!!
Hey ladies - I've just had a look at the survey responses so far and FFA has a pretty good representation. Well done! Let's get some more and get ourselves noticed! xx
UK ladies - just a reminder about the online survey to help with directing research. Several of you have let me know that you've completed it already. Thank you so much! If you haven't yet, please do take a look. It's worth having a bit of a think about what questions you'd like research to answer before you do, to save time. Many topics have cropped up on this forum - there should be no shortage of ideas! Then, it should only take about 10 mins, depending on how much you have to say, of course.
http://www.alopeciaonline.org.uk/hairloss_PSP.asp
Please do grab this chance to have a say!
xx
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