Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Jules UK on September 17, 2014 at 3:38am
It's been just over a week since the UK hairloss survey went live. I was wondering whether anyone had completed it and how they got on? There is another phone conference tonight and it would be useful if anyone had time to feedback. I tried to start a discussion on this website but it hasn't appeared..... Thanks everyone!
Comment by Meme on September 9, 2014 at 3:04am

Hello C

Really sorry can't make those dates I am on holiday.

meme x

Comment by Celia on September 9, 2014 at 2:38am

Good morning ladies - for those in UK with access to M40 near Beaconsfield and would like a get together, I have revised the dates to 16/17/18th of October - I do hope this will be of interest to some of you.  Please say which of these dates you can make and apologies for changing.

Comment by Marian on September 9, 2014 at 12:45am
Thanks Alice, wish there was a definitive answer for my question but like most of the info on FFA it seems to be a lot of guessing and speculating on things. Sigh, still not sure if it is worth the risk of worsening my hairline...anyone else have surgery stories?
Comment by Jules UK on September 8, 2014 at 3:06pm
Calling all UK based ladies. The hairloss survey is up and running from today until October 31st.
Please, please add your questions to it so that FFA can grab some attention! It can be completed anonymously if you prefer.

https://www.surveymonkey.com/s/hairlosspsp

This is the direct link to the survey but there's also a paper based PDF that can be printed and posted off.

Thank you, this is a real chance to secure some research. But only if enough of us contribute. FFA sufferers are in a minority, I know.
Julie x
Comment by Alice on September 7, 2014 at 3:56pm

Marian, I had a hysterectomy without removal of the ovaries, few months before I noticed my hair loss. I've often wondered if there was any correlation. I haven't had any surgery since then, though.

Comment by Marian on September 7, 2014 at 12:44am
Has anyone had surgery and if yes did it affect your FFA?
Comment by Meme on September 5, 2014 at 9:08am

All of those dates are fine for me. x

Comment by Jules UK on September 5, 2014 at 3:53am
Sorry, Celia, we're on holiday in Spain that weekend. Next time! X
Comment by Celia on September 5, 2014 at 2:34am

Ladies - a few possible dates for a get together - 25/26/27 September - please late me know which of these dates you are free on then we'll go for the maximum number of people - OK ? I will email directions if you have not got them from last time. X

 

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