Comment

Comment by Jules UK on June 6, 2014 at 2:38pm

Thank you to all the ladies who responded to my survey appeal! In the light of their (and a few others) comments, the steering group made some amendments to the content and layout of the questionnaire. And, Norfolk Girl, East England has been added to the location list! The web-based survey will be ready in early September, so watch this space!
MJ mentioned the CARF newsletter, there's something towards the end about custom made hairpieces that look like mine, made by a company in the US. Might be worth a look for those ladies on another continent (albeit a big one) searching for just that.
I took my hairpieces off last night for the first time. The skin beneath looked normal, not wrinkly. (Unlike the rest of me:)) and putting them back on was very straightforward. In fact, at my art class today, we were sketching outdoors. I hadn't expected this, so, without hood or sunglasses etc to hold hair down, I would have been very uncomfortable. I love my hairpieces! Have a good weekend everyone..

Comment by DebbieT on June 6, 2014 at 11:26am

Hi All.  I just thought I would share with you that I have been using rogaine on my eyebrows and have finally noticed some regrowth.  Its painfully slow, but it is there!  I had lost all but 7 hairs on my left eyebrow and on the right Id lost everything.  I read somewhere on the net that eyebrow hair is able to grow back as it does not experience the scarring.  Iv'e been applying it to my brows for around 2 months now, and I am so pleased to see new "sprouts" appearing! The lose of my brows was very depressing, more depressing than my full head of hair.

Comment by MJ on June 6, 2014 at 11:15am

Jodi, oh my! MJ

Comment by Jodi on June 6, 2014 at 10:49am

MJ,  I read a study about eyebrow regrowth after intralesional triamcinolone injections.  I asked my dermatologist about it.  She sees a LOT of alopecia patients - all different types of alopecia.  She will NOT give eyebrow injections due to a risk of blindness from injections in that area.  She was surprised to hear that there are dermatologists giving those injections.

Comment by MJ on June 6, 2014 at 8:23am

Hi all, the CARF website now has the recap of the spring conference that was held in Chicago. Something really interesting - they have found that 9 out of 10 patients were able to regrow eyebrows with intralesional triamcinolone injections for FFA. Has anybody heard of this? So far my eybrows are holdong their own woth rogaine, but it seemed like really good news to me! MJ

Comment by Celia on June 6, 2014 at 7:16am

Welcome to Caro !  We already have a Caro - so maybe you would like to be New Caro or a name of your choice - perhaps where you live.  Sorry you have this - we shall hear your story soon I hope. x

Comment by Debs on June 5, 2014 at 4:01am

Whoops sorry its 13 September

Comment by Debs on June 5, 2014 at 3:56am

ALOPECIA CONFERENCE IN LONDON 12 SEPT

www.alopeciaonline.org.uk

Tickets £15

The charity Alopecia UK is holding this event. There are guest speakers and retailers of hair loss solutions; hair systems, wigs etc..

Comment by jess on June 4, 2014 at 10:30am

Pam, I sent you a message about your hairpieces.  I am very curious about them...

Comment by Jules UK on June 4, 2014 at 4:50am

Claire, thank you so much for offering to  complete a survey!  If you send me a friend request, I can give you my email address.  I need replies by tomorrow evening though, so if that's a bit of a push, you will still be able to take part in the real survey when it goes live.  Not sure how soon that will be.

sorry to be slow replying - I was out last evening at a live screening of the Matisse exhibition from Tate Modern.  Such a good idea, these live cinema screenings.  But I want to go to the real thing now!

Julie x

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