Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Anne Louise on April 20, 2014 at 7:50am
Happy Easter to everyone!
Comment by Liz on April 20, 2014 at 7:07am

Happy Easter xx

Comment by Debs on April 20, 2014 at 2:42am
Happy Easter to you all.
Comment by Mandy on April 18, 2014 at 11:59am
I totally agree ladies... Blessed with good health a few aches and pains but I am in my fifties lol... So many friends have fought cancer or have lost family... Helps to put things into prospective!
Love my hair and losing it makes me sad... But I have sooooo many things to be grateful for... Happy Easter xxx
Comment by MJ on April 17, 2014 at 10:47pm
Anne,
I got my diagnosis on the one year anniversary of the Newtown school shooting and I just told myself that everyone of those moms would give every hair on their head to have their little one back!
MJ
Comment by Anne Louise on April 17, 2014 at 10:17pm
I agree. This past Tuesday, when I was supposed to have my eyebrows tattooed, was the one year anniversary of the marathon bombing here in Boston. One family lost their sweet eight year old boy, countless others lost limbs...it definitely put the loss of my eyebrows in perspective.
Comment by Kath UK on April 17, 2014 at 5:13pm

Pam -  I watched the London Marathon on TV and felt humbled by the sheer courage of the disabled runners.  There are certainly worse things than hair loss - upsetting though it is.   I'm particularly aware of this because my daughter has MS (Multiple Sclerosis) and has to cope with that (plus a job and two young children).  When I think about her - and all the other people who live with serious, disabling conditions - it certainly makes me feel I should be able to cope with losing my hair.

(But I still wish I didn't have FFA......).

Comment by Pam on April 17, 2014 at 5:33am

My daughter ran the London Marathon last weekend, and we went up to watch. It really brought tears to my eyes seeing people run who had lost both legs, and arms, and eyesight, and it made me feel sure that if they can overcome such things in life and go on to run a marathon, then I can cope with some hairloss ... Happy Easter everyone!

Comment by Annie on April 16, 2014 at 10:46am

I found a headband that I like at Target for $5 .  It's made by Goody, and has a Velcro fastener in the back so it doesn't mess up my hair when I put it on.  It's also tapered in the back, so it doesn't stick out under my short hair. 

Debs, good idea cutting the buff headbands in half.  I've looked at them online, but they're always too wide to look right with my short hair. 

Comment by Debs on April 16, 2014 at 10:10am
I but buffs and cut them in half, this gives a nice wide headband that covers up our front hairline and is seemless so very soft. They come in loads of colours/patterns. The fabric is quite thin so it looks like a fashion statement not a cover up job.

C, yes do let me know when you will be in Cherstey we can meet for a coffee.
 

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