Frontal Fibrosing Alopecia

Information

Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

Comment Wall

Comment

You need to be a member of Frontal Fibrosing Alopecia to add comments!

Comment by Debs on March 30, 2014 at 5:27am
ULTIMATE FLORA, CRITICAL CARE EXTRA STRENGTH PROBIOTIC. 50 billion live cultures per capsule. Dairy and gluten free. Online in UK about £18
Comment by claire on March 30, 2014 at 4:59am

Yes I have also taken antibiotics for re-occurring urinary track infections. When I have also had an allergy flare up it has always been after a virus or infection.

Interesting.

Comment by Celia on March 30, 2014 at 3:55am

Rita - what is it called ?  Anybody else recommend one ?

Comment by Rita - Canada on March 29, 2014 at 11:25pm
I do not have an antibiotic history and shunned them for most of my life but tried a course of doxyclycine for my FFA re my derm and I honestly am not sure if it helped though the shedding seemed to cease for the most part. Through the time i took the med, i always took an probiotic. My naturpath said to take a quality brand which is refrigerated and contains multiple strains and the more,the better. I have recently decided to take 1 per day regardless of whether i am on this med.
Comment by Anne Louise on March 29, 2014 at 8:47pm
I have been reading a lot the past few days since my conference and it seems to me out gut is the cause of our problems but also can be the solution. So much of our immunity comes from our gut. Antibiotics wipe out the good bacteria that are essential in maintaining a healthy digestive tract. When it becomes too permeable, bad stuff can get into the bloodstream...the result of a leaky gut. I don't know enough about probiotics to recommend a brand or amount yet, but I'm sure someone out there does. I am fascinated by all of this and will continue to study and share. So far everyone that has responded to this thread has been on antibiotics in the time leading up to their FFA diagnosis. Are there any of you ladies that do not have an antibiotic history?
Comment by PamW San Diego, CA, USA on March 29, 2014 at 12:09pm
I am going to jump on the bandwagon. I don't remember dates, but if had a lot of urinary tract infections and sinus infections and took antibiotics several times. Is this a question for Dr. Christos? Could someone reach out to him?

I would also like a recommendation on probiotics. And, who is taking duasteride? I need info.
Comment by Mandy on March 29, 2014 at 9:57am
Hi C my GP told me that he thought that and infection/virus I had in the December which I struggled to get over May have triggered the FFA... He explained that the body had been fighting an infection/virus and the when I was over it my body still thought it was there and mistook the make up of my hair for the make up of the infection/virus??? Who knows x
Comment by Celia on March 29, 2014 at 5:45am

I wonder ?  I have always felt my FFA was triggered by an illness - severe double pneumonia from which it was touch and go for a while - I had a lot of anti-biotics and X rays and took many months to recover - after this my hair began falling out steadily and I was told it was because of being so ill and having lost so much weight. Then 10 months later the inflammation began followed by The Diagnosis.  Can anyone recommend any particular probiotic ? Thanks.  Is there anyone else who feels that medications have triggered their FFA ?

Comment by Maddy, California, U.S. on March 28, 2014 at 4:26pm

I agree. Really interesting comments about the probiotics, infections and antibiotics. I just saw several similarities, so wanted to speak up. First, when I started going through perimenopause, my skin became very oily and I started to have severe acne breakouts...almost like cysts on my face. I was on Amoxicillin for a couple of years. I think my FFA was definitely triggered by a medical condition....while not an infection exactly, I got Influenza really bad the year before my FFA started. It literally took my lungs months to recover (probably close to having an pneumonia). Finally, I actually thought to myself the other day how much better my FFA seems now that I eat an Activia yogurt every morning regularly (for about two months now). I have MUCH less hair shedding. I wonder if we are onto something?

Comment by Jules UK on March 28, 2014 at 4:01pm

Really interesting comments about probiotics.  Does this mean that if I make my own yogurt, it may help? Or is that too simple?  I've just heard from Nottingham that I've been randomly selected to take part in the research into psycho-social affects of alopecia.  My appt is on April 8th.  The Dr sounds lovely. Has anyone else opted to participate?

 

Members (599)

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2026   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service